1 (edited by marions Sat, 13 Oct 2012 20:25:34)

Topic: Invitation to Sign Consensus Letter

Supporting the Proposed Federal Rule to Expand the Rights of Individuals  to Access Their Test Results

Please know that deadline for signature is October 23rd.

The Genetic Alliance  http://www.geneticalliance.org/ is taking the position that individuals need quick, convenient access to their medical records in order to better manage their health. Patients’ rights should include direct access to their lab results, just like all their other medical records.

The 2009 HITECH law modernized patient access rights by allowing individuals to get copies of their medical records in electronic format. Unfortunately, however, patients’ access rights do not include lab test results.  Lab test results are in a uniquely restricted category compared to otherhealth information, which impairs patients’ ability to see, save, use, and share their own test results.

If you would like to support their position to allow you being entitled access to your lab test then please, contact
Barbara Wilkinson: bwilkinson@geneticalliance.org

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Invitation to Sign Consensus Letter

Marion asked me to share the Consenus Letter that she mentioned in her post.

Here it is:

CLIA Consensus Letter 10 12 2012.pdf

Re: Invitation to Sign Consensus Letter

Thanks a bunch, Eli. 
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER