Yes, we both had CCA. The big difference was I got diagnosis at a much earlier stage with no symptoms ( tiredness may be , but if you work all day long at work and do house chores like lawn mowing and do maintenance of the house after work) how Do you distinguish that tiredness is related to your work or the disease you have inside. I was diagnosed in stage IIb when CAT SCAN shown I had CCA of 6x8 cm in size). However, in contrary , she discovered her extra hepatic CCA when she noticed her dark brown color of the urine and the clay color stool,jaundice too. At that time she was already at stage IV with mets to the omentum, that is why I am in a unique position of being a patient and a caregiver. I know both sizes of the good and the ugly of this disease.( I advised her and her husband from day 1 till her final day on earth. She was a good Christian,she did not blame anyone, she had no pain most of the time, and she understand God' way was the best way for her. Hundreds of her church friends visited her during the final days. When my daughter prayed and thank her for everything she did for her, my sis-in-law was to weak to talk, but a couple tears drops running down in her closed left eye to let my daughter know that she was moved by her prayer and understood her good heart effort was not in vain. Two days later,she passed away at hospice with a smile on her face according to her husband.)
Iam not saying I am the only one to know about this disease in such an unique way, but I know I need to do more for conquering this physical and emotional depending disease.
Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.