1 (edited by PCL1029 Wed, 24 Oct 2012 15:53:00)

Topic: Day 3. DIA/NORD

Hi, everyone,

http://campaigns.rarediseases.us/t/View … 9DA1FD82E9

For the venture capital, Mr Leff ( management director, Warburg Pincus ) indicated that there are much less interest in investing in new drugs for other diseases except in rare diseases as shown in a survey done last year. But there are hurdles such in the government regulatory agency need to overcome too.

With regard to the FDA rep. And the patient advocates involvement,  (I presume in this case ,is represented by NORD ).   But I have a different feeling about INDIVIDUAL patient advocate's usefulness in contribution to the actual process of drug approval.
Finally, most of the US presenters agree no matter who will become president next term, the most important for us, as an individual to do now is writing to our senators and congressman ,urging them work together to avoid the 8.5% overall budget cuts ACROSS the board starting Jan. 2nd, 2013.
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: Day 3. DIA/NORD

Percy...thanks for checking in and sharing the info with us.  Have fun at tomorrows conference and then at the FDA meeting.   
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Day 3. DIA/NORD

Percy, another fine report. Thank you so very much for doing this for all of us! We so
appreciate you and all your efforts.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.