I have a question I didnt think I was going to ask but find myself thinking of nothing else. The cesplatin has caused permanent ringing in my sons ears so the Onc changed his regimen to carboplatin and of course the gemzar. He has only had two infusions of the new duo and it is much more gentle to his system.
When he was initially diagnosed his CA19 was 110,000. No typo there. It has plummeted since the June 13th labs and in October had reached a low of 1040. Well his Nov. results are back up at 1560. I have read on this forum not to focus on the CA19 but I also have not seen anyone with the high numbers my son has had. He is doing really great. His last scans in early October showed "moderate" shrinkage. If you saw him you wouldn't know he was ill. His has controlled his nausea with medical marijuana ( legal here in CA, and a god send) and been able to maintain and even gain weight. He is completely engaged in his life! I cannot believe he is as ill as the scans show. And three experienced surgeons have said No Surgery. I'm waiting for a response from Dr. Kato. Fingers crossed!!! I guess my question is does the CA19 mean he is regressing? Why are his counts so crazy high compared to others on this site? As always my heart goes out to each and every one here! Keep up the hope and the fight!!