Topic: Stereotactic radiation
I don't know how this works for others, but I wanted to post in this section for anyone who is given this as an option:
I received stereotactic radiation in June/July on the single tumor and the lymph nodes that are active with 2 different mutations of CC. The radiological onc said Monday that he couldn't have asked for a better outcome. Since I am inoperable, I have to live with cancer.
So here are the results of the PET nd CT scans:
The CT has some clips blocking the results due to the embolizations so we ran a PET scan. It showed "mild uptake". and they did not record numbers. The onc says the reason they didn't record numbers is because the cells are barely more active than "normal" cells. I take that as good news.
There will come a time when the cells start becoming active again. It might be months: it might be years. I'm praying for the years. Right now we are going to treat it as a "chronic illness" and watch with CT scans every few months.
I just wanted to share the news for anyone that is given this as an option. The best part is that it was 5 visits, not many many visits. I am maxed out in those areas: I can never receive radiation to those areas again, but the results are wonderful. I also know that it might not work as well for others as it did for me, but it should give you hope.
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.