1 (edited by Pamela Wed, 30 Jan 2013 19:29:58)

Topic: Lauren is finally getting what we have hoped and prayed for.

Hi Everyone! I have known about this since last Monday and I am so happy I can finally tell you all. I thought I was going to bust!!!! Lauren is going to get to have a resection!! She was thinking long and hard to make sure this is what she really wanted. She always knew she wanted to have the surgery, but her doctor said he wanted her to think for awhile to make sure she is in this 100% because it will be very tough. Lauren said she was sure she wanted to go ahead with the surgery because the other day she was thinking about it and she was actually happy for the opportunity. When we were first told about it, I think we were in shock because we had always hoped for it, but never really thought it would actually happen. Lauren is very stubborn and headstrong. She hasn't called Dr. Sonnenday yet to tell him she wants to do it because she has said she would call him on Wednesday and that is what she is sticking to. Maybe that tough personality is what has gotten her to where she is. We talked to him last Monday when we were at U of M for over an hour. Lauren had like 4 pages full of questions. He answered every one of them. He actually wants to do 2 separate operations. The first will be laparascopic to make sure there is no disease outside her liver, remove the small tumors in her left side, and remove the healthy blood flow to the right side. The second one would take place about 6 weeks later after scans. That would be the big one where 2/3 of her liver is removed. The large tumor used to be around the portal and hepatic vein and artery. It is now just leaning near it. This is the right time for surgery with everthing he has seen. She has responded well to chemo and bounces back from everything they throw her way. Lauren asked Dr. Sonnenday why he wants to do this surgery and besides the  obvious of wanting to help her, he said because he hates this cancer with a passion. We are so happy for such a wonderful surgeon. I will keep you all updated with news as I find more out. God bless you all that are suffering with this disease, caring for someone with disease, or have lost a loved one to this disease. We love you all.

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Lauren is finally getting what we have hoped and prayed for.

Pam!

I'm so excited!  I was thinking that's what it was or maybe a transplant.

So glad to hear the good news.  Lots of positive thoughts and prayers for Lauren.  I'm sure she will do well.

I had a resection, just one operation, though, not two like they are planning for Lauren.  It was not nearly as bad as I thought it would be.   I had very little pain.


I think she will do great! 
Keep us posted!  When is the big day?

Susie

Re: Lauren is finally getting what we have hoped and prayed for.

I am so glad Lauren is being given this opportunity!! I've been doing the happy dance!! I am just thrilled to hear this! I know it's scary but sometimes you just have to believe things will work out! To be honest, I'm jealous, too. I'll be counting down the days with you...

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Lauren is finally getting what we have hoped and prayed for.

I don't post too much, but wanted to let you know how happy I am for you and Lauren.  Look forward to hearing more good news for you.  Lauren is lucky to have you.  Would you please let Lauren know that she is in my thoughts and prayers every day. 
Cristerry

Re: Lauren is finally getting what we have hoped and prayed for.

Pam.....don't know how you were able to keep this incredible news from us.  Words cannot express my excitement for Lauren; she rocks, as does her medical team.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Lauren is finally getting what we have hoped and prayed for.

Pam...this is fantastic news...so rapped about the news...my thoughts and prayers with Lauren, you and family.

Cheers
Ilias

Re: Lauren is finally getting what we have hoped and prayed for.

Pam,

I'm absolutely thrilled to hear the news. So happy for Lauren, you and your entire family. Sending my best wishes that everything goes exactly as Dr. Sonnenday has planned.

I know you must be scared... hang in there.

Hugs,
Eli

Re: Lauren is finally getting what we have hoped and prayed for.

Pam, so happy for Lauren and your family!  She is young and strong and will do well with these surgeries.  It is amazing to think such skilled surgeons like Dr. Sonnenday exist!   I'll be thinking of you all as plans get underway.  Please update us like you always do as things move along.  You and Lauren are special people to us!  We care so much!

Re: Lauren is finally getting what we have hoped and prayed for.

Pam and Lauren.....this is just terrific news! So happy for your whole family....will be sending positive vibes and lots of prayers. Wow this just shows how much having a positive outlook, loving family and great Dcotors can do for you!
Nancy

Re: Lauren is finally getting what we have hoped and prayed for.

I already posted to your blog but can't help to respond here as well.  Words really can't say how happy I am for you and your family.  Miracles don't come often enough for people with this cancer, and I'm beyond thrilled that one is happening for Lauren.  She seems like such a strong and wonderful person, and with the strength she has, I believe she will come out of this with flying colours as she has with every other obstacle that's been thrown her way thus far.  So happy for you all!!!

Congratulations you to you... such fantastic news!!

Jen

Re: Lauren is finally getting what we have hoped and prayed for.

I am so happy for all of you. This is fantastic news!
Love,
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Lauren is finally getting what we have hoped and prayed for.

Truly fantastic news,Pam
                             Janet

Re: Lauren is finally getting what we have hoped and prayed for.

Oh my gosh, I can't tell you how thrilled I was when I read the subject line of this post!  I am so happy for you Lauren and your family. 

I am sure many emotions are going through your mind about now.  Hang in there, she will do great!

((Hugs))
-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Lauren is finally getting what we have hoped and prayed for.

This is great!!! We will be with you and Lauren every step of the way in thought and spirit !
Willow

Willow

Re: Lauren is finally getting what we have hoped and prayed for.

SO excited for you all !!!!

Deane

Re: Lauren is finally getting what we have hoped and prayed for.

Great news Pam!  We will be keeping Lauren in our prayers!

Patti

Re: Lauren is finally getting what we have hoped and prayed for.

That is WONDERFUL news :-)

Sending love and hugs your way

Andie x

Devoted Daughter to the most wonderful Dad a girl could ask for.  Sadly lost his battle on 19.02.11, peacefully in the arms of Mom and I.  As requested by Dad "we will keep on smiling".

Re: Lauren is finally getting what we have hoped and prayed for.

Thank you all so much for your lovely responses. Lauren will fight like mad to become a success story. Much love to all of you. You are the best support we could ask for!!

-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Lauren is finally getting what we have hoped and prayed for.

I am so happy to of logged on for the first time in awhile and been greeted with such fantastic news!!!!!!  You are both in my thoughts and prayers and I am forever grateful for the advice and support you have shown me Pam since my own journey began.  (as I am to all the other wonderful people on this site too).

Much Love
Mandy

Re: Lauren is finally getting what we have hoped and prayed for.

Pam,

Congrats!  That is great news!  Even though it was what you have been praying for, it is still scary.  Thankfully Lauren is young and strong and that will definitely help her. Not to mention she has a great name!  She is very luck y to have such a wonderful and supportive mom. 

Best,
Lauren

Re: Lauren is finally getting what we have hoped and prayed for.

Hi Pam,

I've just seen this post about Lauren's news, superb!!!! I am majorly chuffed for you both!!!! Of course I will be keeping everything crossed for the most positive of outcomes for Lauren. Excellent stuff!!

Hugs to you and Lauren,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Lauren is finally getting what we have hoped and prayed for.

Thank you so much, Mandy, Lauren, and Gavin. Your words are so kind. I agree with you, Lauren. It is a great name!! Love to all,

-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Lauren is finally getting what we have hoped and prayed for.

Congrats!!!! Wish her the very best. Thanks for sharing your good news.

Re: Lauren is finally getting what we have hoped and prayed for.

Pam and Lauren,

Congrats to Lauren and for you too Pam!!! God has truly answered another prayer!! I am so happy for Lauren, yo have so many blessings coming your way prayers will continue to go your way and I am so happy for the great  news.

God Bless you all!!! Your news made my day!!!

Love,
Darla
p.S. Pam, thank your words of encouragement and advice. You have been such a blessing to my life !!!!!!!!!

Ready to fight the battle of my life!!!!!  With God as my guide!

Re: Lauren is finally getting what we have hoped and prayed for.

Thank you, Darla. You and Lauren may be recovering from surgery about the same time!! We travel to U of M on Wed. and hopefully will find out when they plan on doing her first surgery. All the best to you.

Love,
-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.