I can imagine how the research can be depressing. You delve so much more deeply than I do into this disease and I find it difficult at times. It sometimes makes me feel so hopeless. That's when I pull back a bit and try to regain my positivity. It is difficult - so I thank you again for your perseverance. This website, and all the people on it, have helped me immensely. I've learned so much from all of you and it has helped me with questions for my doctors.
I keep asking my doctor about surgery since I hear that is the best chance of long term survival. But I keep being told because the tumor is on the left and right side of my bile duct in my liver, and also at the junction point where the bile duct leads into the liver and also because lymph nodes were involved, that I am not a candidate for surgery. But I will keep asking that question as I continue other treatment.
As I mentioned in an earlier post, I am being treated at Memorial Sloan Kettering in NYC. I am considering sending all my records to Dr. Kato at NY Presbyterian for a surgical opinion. I don't want to do that until I complete the SBRT next month.
Again, thank you all for the informative information on this website. It is invaluable for all of us dealing with this disease.