Sorry it has been so long. I will try and update more. Lauren is getting better one small step at a time. I am surprised at how slow the process is. Lauren is the most stubborn person you would ever meet. She does things her way on her time!! I said this to Kristen, my oldest daughter and she gave me this look and said, She is just like you, Mom. She has all her IVs out now and is only on oral pain meds. She is also taking lasix because her legs are swollen with fluid. They wrapped them in ace bandages and that is helping. She can get up and walk to the bathroom and we really wanted her to walk more, so I had to use tough love yesterday with the help of Kristen, Bruce, Gio, and Ryan. She is angry with me, but will get over it. This is all out of love. She has been so drugged up and not really there, so they took away one med and she is only getting the dosage of morphine she got before the surgery at home. I think it took this long to get all the other drugs out of her system. She had help from physical therapy and walked down the hallway. Then we took her on a wheelchair ride all around the hospital. She probably is losing a lot of weight because she is barely eating. Nothing tastes good and she just isn't hungry. She is just puffy with fluid. Gio stayed with her last night and the night before so I could get some rest. It feels so good to sleep in a bed. I am taking care of myself so don't worry about me. We just want Lauren to get strong so that her next surgery on Friday is easier on her. Well, gotta run. Thanks for the concern, prayers, and comfort.
My beautiful daughter, Lauren Patrice, will live on in my heart forever.
My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.