Topic: New member introduction
I have been reading this forum for awhile and thought I would introduce myself. Prior to being diagnosed with cc, I already have a disease called gardner's syndrome, a form of FAP. As a result I had part of my colon removed in the 70's and the rest of my colon removed in the 80's. in the 90's I had polyps removed from my duodenum. After 10 years of endoscopies and ct scans, I had my gall bladder removed for a large mass in 2005. In 2008, after getting three opinions I had the Whipple procedure performed due to large areas of high grade dysplasia in my duodenum. Due to complications I spent 100 days in the hospital over a six month period. I am still on pain medications starting with the Whipple. In 2010 I had seven rounds of chemo to shrink a Desmoid tumor in my abdomen enough to surgically remove it. Because I have ct scans done every six months the tumor in my duct and liver was found in December, 2012. After 3 biopsies came up negative, I had half of my liver removed February 1. Their was no lymph node involvement and margins were good. I did have some problems with abscesses and went home with a drain and IV antibiotics. Thankfully that is done now. I do have several areas of high grade dysplasia in my remaining liver. I start chemo later this week, genzar and cisplatin, two weeks on and one week off for twelve weeks followed by 6 weeks of radiation along with oral 5-fu. I hope to get into a clinical study in buffalo my after that but that is in the preliminary planning stages and I don't know much about it. I have been encouraged somewhat by reading other people's stories here and thank those responsible for this forum.