Topic: Anyone have info about IVC and tumor involvement?

When I had my unsuccessful resection attempt, I was told that it was aborted due to the tumor being wrapped around my inferior vena cava. 

Does anyone have any information about a situation like that? 

I suddenly have this feeling that I could drop dead at any moment.  Is that a legitimate worry?  Or would the tumor gradually choke off the vein?

My doctors are not too helpful about this, and I'm afraid it is because they don't want to worry me.  But I'm the kind of person who will worry more if I don't have a complete and honest picture of the situation.

Re: Anyone have info about IVC and tumor involvement?

Hi Lisa,

My second surgery (2 years ago this month) was also broken off because the recurrence was stuck on the IVC.

I'm still alive and kicking and doing very well-- after work today I'm going to do my usual 6-mile run. So, it's a real bummer that they couldn't operate on us because of the location, but I don't think that having the tumor there necessarily is dangerous.

If you're really concerned about it, you should ask your doctor-- but I don't think it helps us to worry a lot about things that might maybe happen in the future, if there's not a thing we can do about it.

Hope this helps! By the way, I love your blog!

Kristin

Peace, hope, and healing to all!

Re: Anyone have info about IVC and tumor involvement?

Thanks, Kristin!

Your comment is certainly reassuring.  I'm trying to get back into bike riding, and was concerned about the IVC involvement with excercise.

Re: Anyone have info about IVC and tumor involvement?

Bike riding sounds like a great idea-- exercise plus scenery!

I admit this is TOTALLY unscientific, but I have this idea that exercise makes my blood flow more strongly, and keeps "bad stuff" out of my blood vessels. I told that to my acupuncture doctor (who is an MD) and she said that from a western-medicine point of view, that doesn't really hold much water, but from a Chinese-medicine point of view, that's quite true.

So I would say, go for it! And have fun!

Kristin

Peace, hope, and healing to all!

Re: Anyone have info about IVC and tumor involvement?

My tumor invaded the IVC and I did have a resection.  The operation took 8 hours and they removed three inches of the IVC and replaced it with synthetic material.  I now take Ecotrin once a day.  The asperin is a blood thinner and I do bruise easy.  After one year, I'm back to work full time.  I exercise and I agree with Kristin, it keeps the blood flowing and it's good for the heart.  If you have any questions, just ask.  My operation was done in New Hampshire and the liver surgeon, at first, said no but he consulted with the Director of Transplants and it took one month to coordinate the operation but I had the liver surgeon, the Director of Transplants and a vascular surgeon to remove the 9 inch tumor.  They removed 70% of my liver.  You need to be your own advocate!  Chat later.