Re: Survival...Please tell us your latest milestone

Hi, Randi, Girl! What am impressive resume you have! You just keep on keeping on! A true poster girl for beating Cancer no matter how rare or what kind! Awesome!

THANK YOU FOR LOVING ME! Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Survival...Please tell us your latest milestone

Thanx Lainy!  Can i add that I turn 60 on Saturday.  Hard to believe cause I feel a lot younger than that for sure, but that is what the calendar reads.  I have decided I don't believe in calendars smile

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Survival...Please tell us your latest milestone

Congrats on another year Randi.  Thanks for all the hope you give to others.  Have to agree.  I don't believe in calendars either.  smile

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Survival...Please tell us your latest milestone

Randi.....congrats not only once, but three times around and happy, happy Birthday to you.  Much to celebrate, dear Randi and I thank you for allowing us to share your joy
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Survival...Please tell us your latest milestone

Congrats to you Randi on a few fronts, that is majorly kicking some cancer but!!

60??? No way!!

Congrats and happy birthday to you!!

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Survival...Please tell us your latest milestone

my husband  Mike is celebrating the one year anniversary of his resection.  Cancer free one year and feeling great!

Debbie

Re: Survival...Please tell us your latest milestone

Great news, Debbie.  Congratulations, Mike!

"Just for today, I can get through anything."  I'm a cancer survivor, not a doctor.  The opinions I state are my own, based on my personal experiences.    As always, talk to your doctor about your concerns and treatment.

Re: Survival...Please tell us your latest milestone

Congratulations-  SO happy for you and Mike!!!!!

Re: Survival...Please tell us your latest milestone

Debbie and Mike....celebrating right along with you and a great story to share with others at our upcoming, annual conference.

See you there.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Survival...Please tell us your latest milestone

Julie, Catherine and Marion,

Thank you for your good wishes.  Mike and I are grateful for our many blessings, including  having this forum to guide and encourage us on this journey.  The caring and support you and the other members  of this board is so very much appreciated.

Hugs to all!

Debbie

P.S.  We are looking forward to seeing you and others at the conference - just a few weeks away!

Re: Survival...Please tell us your latest milestone

This is so inspiring to hear of these milestones. I hope to have one to share for Tom soon!  I tell him almost daily about all of you who are in the midst of surviving and those with NED. it makes both of us so happy. nip this deadly sucker in the bud!

Re: Survival...Please tell us your latest milestone

my sister has been living with this terrible disease for 6 years now. she is still fighting it. it keeps spreading and she keeps fighting. it has now most recently appeared in her colon. this fight is tiring. she will be starting chemo and radiation again soon. hopefully it will work. i don't get to post much anymore as besides my sisters cc my mother in law has alzheimers which keeps us busy as well. i hope they can find a more effective treatment for my sister soon.

Re: Survival...Please tell us your latest milestone

Dear Sally,

My thoughts are with you and your family.  I look back on the past few years and realize that life changes not only for the patients, but for all their loved ones.  My mother is now the caregiver to Dad, and she says it was easier being the patient than seeing what it's doing to Dad (lung cancer with brain mets).  I'm sure your support has and will continue to help your sister with her fight. 

Take care,
Catherine

Re: Survival...Please tell us your latest milestone

Here it is September 21st already, the day eleven years ago an ultrasound discovered a soft tissue tumor in my left hepatic duct just before the point where left meets right. Wait 6 weeks to see a Gastrointestinal specialist, wait 3 weeks for ERCP then wait 5 days for results/recommendation, then make appointment to see surgeon, it was 4 months before anything was actually done, a liver resection removing 60% of my liver (left side)  January 26 of 2006  I was home in 5 days, healed well, had no further complications, went back to work in ten weeks, and have managed to have a normal life since. I have restriction issues in the duct as it builds scar tissue at the point the bile duct was sutured together. My primary care doctor helped me find that an anti inflammitory drug that opens the restricted bile duct enough to keep things working. I am healthy and able to do anything a man my age can do. I am pleased to share that another year has gone by without any difficulty other than taking a pill every day. I suppose it doesn't get better than this. Sometimes things do work out well, just not often enough. I try to show every day I am grateful to be here  by helping others and giving more than I take as a rule. Stay active, be smart about what you put in and on your body, and don't think about cancer all the time. Try to stay busy enough to not have time to even think about it. I guess that is my story, I had many good breaks through it all and I hope the stars align for someone else soon. God bless, Pat

Senescence is a beautiful thing....

Re: Survival...Please tell us your latest milestone

Hercules....these type of updates are enormously important to us.  Thank you.  Scar tissue build-up is one of the problems many others encounter.  What is the medication you take?  I assume it is not Ursidol.
Again, thanks so much, dear hercules for your continuous interaction with the global patient community.  You rock.

Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Survival...Please tell us your latest milestone

The drug is called Meloxicam, it was initially prescribed for a bad shoulder joint which is an old injury that is a source of pain when the weather changes. I noticed after beginning the medication my stools are dark and my urine has returned to light yellow. When I spoke with my doctor about this, he told me when any part of your body is sending a strong pain signal to the brain a stress hormone is released causing numerous sites of scar tissue around the body to "light up" as he put it with inflammation. We are not only treating your shoulder he said, but your scar tissue in your bile duct as well. This has worked well now for almost two years, we have increased the dosage from 7.5 to 15 mg. which worked better. It is a reasonably priced pill at 1.00 for a thirty day supply. It is hard on the stomach and must follow a decent sized meal. There it is Marion, the whole enchilada. I hope someone can put off a stent as I have , as that is often the site of further life threatening problems (not always though...I know a 20 year liver transplant patient with a metal stent that has been in place for more than ten years ) so stents are not always problematic. He is doing incredibly well also and he is one of my hero's . Thank you all again, Pat

Senescence is a beautiful thing....

Re: Survival...Please tell us your latest milestone

This website is  a Godsend.  When first told about liver cancer from my primary dr., my son and I were given the impression I had about 6 months (along with info from internet).  At last chemo the NP said my tumors were shrinking, but I need to ask tomorrow how she knew that from blood tests.  Still so much to learn.  Tomorrow (chemo time) I'm gonna ask what CA-19 means.

Tomorrow I have a free 15 minute acupuncture session during infusion.  I just look at what is good about this silly thing and make the best of it all.  Because of this website my kids are not as freaked out.   Love, love, love and need  the survival stories.  Thanks

Re: Survival...Please tell us your latest milestone

whatnow.....it is a never ending learning cycle with this cancer.  Know that we are here to help you understand and don't hesitate from asking question.  The members of this board understand, as all of us began were you are now. 

The CA 19-9 tumor markers most often are used as another tool in determining if the tumor is growing, remaining stable or is getting smaller.  It is not an absolute and can rise for other reasons as well.  On it's own, the maker does not carry much value.

Good luck tomorrow and hugs to your kids. We are in this together.

Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER