Topic: new to this all

Hey I am 9 months[since nov.16th -08] into  living with CC.I had never heard of
this cancer before. I am on Gemzar only!! I just found this site two weeks ago.
I am doing good so far, but would love to hear from someone who is taking treatment like me.I am noticing that most of you are on more than  one chemo.. I am on Gemzar  and then pain meds if needed and a sleep aid at night , if needed. I have even had scrinkage and was told this cancer does not normallly do this..also Doc only gave me 4months...that was 6months ago...I give God the glory for that...

provervbs 3: 5 & 6

Re: new to this all

Hi, my husband was diagnosed 5/07 and was on Gemzar all last summer.  In his case, it did make him feel better at first, but then after many weeks, he began to feel worse.  He is one that didn't have any shrinkage of the tumors from Gemzar.  Some people have very good results with it.  I also noticed mention of so many other drugs and procedures, I began researching.  Charlie was also given the 3 to 6 months speech and he's still here 14 months later.  I personally feel that only God knows the time and we should not listen to the doctors on that one.  We went for 2nd and 3rd opinions and chose what we thought was the best of those and never looked back.  Since then, he's had chemo, chemo and more chemo, radiation, chemoembolization, radio frequency ablation and over half his liver removed in 11/07.  Unfortunately, tumors have recurred in his liver. This is just our personal situation, but we've never regretted any of it and we keep battling this awful cancer and moving on.  A good positive attitude and a sense of humor also help tremendously.  Charlie's opinion is that he would not be alive today if he would have stayed on just the Gemzar indefinitely.  Now, we're starting to discuss the issue of how much more drugs and treatments can he have and not compromise his quality of life?  I don't mean to scare you in any way, just sharing what we've experienced.  Everyone reacts so differently to all the treatments.  I wish you the best!

Carol

Re: new to this all

Thanks Carol,
I am with you on the fact that only God knows how long we have
I feel God is healing  me and so far all is going well.
I at this time am okay with only the Gemzar..I have no ill effects and prgress was noticed from the first  treatment..I just want to know my options if the Gemzar quits working, which my doctor says I may face that and most likely will face that one day..Thanks for the information and may God bless you all during your journey .God is in control and He  will carry me through or with Him ...either way I am honoring God in all of it.
thanks again
lissa

provervbs 3: 5 & 6

Re: new to this all

Lissa.....so glad for you joining us and congratulations on the shrinkage.  Carol made several great points and one in particular I would like to follow up with that being  the seeking of a 2nd, or possibly, 3rd opinion in regards to your treatment. 
Wishing for tons more shrinkage coming your way.
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: new to this all

thanks Marion for your kind words and I am so glad to have found this site,as i have said,I am new to the whole CC life with or without it..So as I live with this...it is always nice to know I have someone who knows just how I feel from time to time.. And I always say...My Lord and Saviour Jesus is blessing me each day...

provervbs 3: 5 & 6

Re: new to this all

My husband Joe was diagnosed two years ago and he just started Gemzar and Xeloda(which is an oral chemo) together in April.  he seems to have no side effects from xeloda no but they had to decrease his dose after 7 cycles.  He can only get the Gemzar every two weeks because it knocks the heck out of his blood counts , white, Hgb and platelets.  His tumors which are in liver, lungs and spleen have not shrunk but they haven't grown since March so we are happy with that.  Hope this info  helps you.  God Bless.  Mary Anne

Re: new to this all

Mary Anne
Thank you so much.I have heard about Gemzar and the blood counts, so far I have not had any of this..I have been so blessed...Sounds like Joe is blessed too.Its always good to hear sucess stories. As for me I had treatment today and blood counts were all great!! God is good. Lissa

provervbs 3: 5 & 6

Re: new to this all

I am new here.  My husband was officially diagnosed with CC the day before our son was born, June 8th, 2008. On the down side, an internal medical doctor told us he had 3-6 months to live, not an oncologist. When we finally got out of the hospital, we were able to get to our oncologist at Big Baylor in Dallas who was mad that my husband was given such grave news without more testing from him.  CA19-9 was at 48203 in early July, today his number is 10161.  Our oncologist is very pleased and sees at the very least another year or two.  Chemo is taxotere & cisplatin (I think) every week.  My husband also has ascites, which is drained every 5 days.  Ascites only started after a liver biopsy in early May, doctor says this is just a coincidence, but I don't think so.  My husband is very weak and has not been able to return to work since late May.

Does the acsites ever go away?

Christine B.