Topic: IF ONLY

Good morning CC world!  We now have 27 letters for the Oprah Show! While I am waiting for the letter from the Board, I thought I would just say 2 more days and mail the package Friday.That would give us 2 more days to perhaps get 3 more letters! So if you have not jumped aboard and still would like to....just send me your 1 page letter to my e mail address.  I'll be CCing you!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: IF ONLY

Hi Lainy - I guess I'm jumping on the bandwagon a bit late.   Is there a form letter you are doing that I can add my name to?

- Suzanne

Re: IF ONLY

No form letters. Caretaker and patients have written 1 page letters mostly about their journey on this rocky road. Everything helps to put the point across that we are ignored in this battle.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: IF ONLY

Well, Lainy , you finally goaded me into sending one. It's the best I could do under the circumstances. Good luck and more power to you. I have admiration for people who walk the walk, not just talk the talk. Have a good one, Belle

Re: IF ONLY

Dear Lainy,
I ditto Belle's message.  I am sending my one page letter and hope this helps the cause in some small way.  I am not much of a letter writter, but I did the best I could.  Thank you for your efforts.
Karen

Wishing all God's blessings!

Re: IF ONLY

Thanks, Karen, that gives us 29!!!!!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: IF ONLY

Hooray!  Let's hope you get that magic #30 you were looking for.

Wishing all God's blessings!

Re: IF ONLY

Hi Lainy and all,

My name is Gavin and my father was recently dignosed with CC. I sent you a letter to the email link under your name talking about my fathers story. I only registered with this excellent site yesterday, so I don't know if my letter will be okay for you to use. Having only just joined the site, I didn't know if it would be ok for me to write to you as a carer and a son regarding my fathers story, or if you only wanted letters from people suffering from CC. Anyway, I sent you the letter. Hopefully you will find it useful.

I will do an intro type post to all on myself over the next few days.

Love to all

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: IF ONLY

Gavin,
Lainy is collecting letters from caregivers and survivors.  Each and every letter is important to us.  Thank you so much for your letter and contribution to this important endeavor.