Topic: Second Opinions....

Well I've just phoned Prof Lodge's Secretary , (thanks for posting those details , Jules) .

She said they'll need a letter of referral , so I asked if consultants tend to take umbrage at this , and she ummed and arred for a while before saying yes !

Obviously my health comes first , but at the same time I'm reluctant to burn any bridges with my present team at the Marsden.

Anyone experienced this ?

Jon

Re: Second Opinions....

Hi Jon,
If you have a good GP let him act as the intermediary and I think he can give you the referral. Do you have a nurse liaison at the Marsden? We had one at the Royal Free and she was excellent. She arranged for us to get all the scans and tests and advised on how to proceed when we wanted to have private treatment.
Don't be put off; you are entitled to a second opinion and your exisiting consultant (prof Cunningham??) may be miffed but there's not much he can do if you want to go ahead.
Good luck

Re: Second Opinions....

Good advice , UK , re:GP , he is good , I also have a great nurse (albeit perhaps under the employ of my prof ), but will speak to her Tuesday.

4 (edited by jules Fri, 04 Aug 2006 15:32:52)

Re: Second Opinions....

jon,

please do not be put off seeking second opinions, most oncs are quite used to this when patients are faced with a cancer diagnosis.  My Dad (Geoff) sought a second opinion and we were referred to Peter Lodge, we live on the south coast, we have found that you do have to travel to find the right people.  Also, prof cunningham is an oncologist and not really able to advise concerning surgical options as it is not his field - how could he be offended?

good luck, Jules

Re: Second Opinions....

Jules

Jon had his 2nd scan last week , got results today , no change, suppose thats good ,at least no spread. He has appointment with Prof Lodge on Weds  in Leeds .
Hope your Dad is doing ok .

Alison ,(Jons wife)

Re: Second Opinions....

Alison,

Great news about the scan.  Good luck on Weds, Peter Lodge has a lovely manner and is very down to earth and upbeat, Jon will be in very good hands.  The surgery went very smoothly for my Dad and the nursing post op care was superb at Bupa.  Even though my Dad has suffered a recurrance his tumour burden has been reduced and this has enabled him to be free of alot of possible complications/symptoms generally associated with a tumor in the liver.  It has also enabled us to be able to consider some treatments that might not otherwise be available.

We have been able to enjoy a great Summer together including a break in Cornwall and my Dad was able to enjoy some walking.  My Dad is doing ok and is focusing now largely on diet and alternative supplements to boost his immune system post chemo which he feels has now run its course. He is also researching treatment options as he waits for his blood results to improve.  On the whole my Dad is active and eating well and has a good quality of life.  At the weekend he was enjoying some gardening.

I will be thinking of you both on Wednesday, do let me know how you get on. 

Jules

Re: Second Opinions....

Jules

Good news , Prof Lodge has said he can operate , jon needs to have a PET scan and a laporoscopy first , but fingers crossed , operation should be the end of Oct  . will be done at St James's in Leeds

   Thanks for your good thoughts

Alison

Re: Second Opinions....

alison and jon

that is fantastic news, Jon, you will be in excellent hands.  Any questions about the surgery - what to expect etc, just ask - my dad(geoff) is on this site often too.  Wishing you all the best for the op. 

Jules

Re: Second Opinions....

jules wrote:

alison and jon

Any questions about the surgery - what to expect etc, just ask - Jules

Thanks , but I think I'm too scared to ask smile

Really , if I think of anything , you're top of my list , thanks .

Re: Second Opinions....

Good luck! xxx