Topic: New to the website

Just wanted to introduce myself.  My mom Mom was diagnosed with bile duct cancer in May of 2007. Her oncologist is a wonderful doctor as well as his staff and they begain to fight this battle with her on May 29. She did very well with the treatments, eventhough there were some bumps along the way. Her platelets were very low at times, potassium, magnesium, iron levels, etc. would go down from time to time, but still Mom and her team persevered.  Finally in the summer of 2008, they decided to give her a break for a couple of months. However, upon her return for treatment, they discovered that the tumor had grown a little, so they loaded up with some new ammunition and began another round of treatment (5FU). But this time, it faltered and her body just couldn't deal with it - she had to have 3 units of blood, had to have a port put in (for ease of administering further chemo treatment) and also had to have albumin infusion therapy. Which brings us up to her current status.

For now, Mom is resting and gearing up for new research and new chemo therapy treatments to become available.  Her family, faith and friends keep her busy and optimistic.

Her legs swell due to the fluid retention that goes along with the liver not functioning.   She is under the care of Home Hospice, and there are so many questions, but I am afraid of the answers.

I am scared almost everyday that things will not stay the same and that her condition will worsen and I won't be prepared.  (are we ever prepared???)

This is a wonderful website and I have been reading everything I can get my hands on.  Thanks

Re: New to the website

Dear CS....welcome to our CC family and thank you so much for sharing your Mom's story.  Please, feel free to ask the questions close to your heart as your support system is in place with us.  I am hoping for your Mom to be relieved of the fluid build up and that she will regain her strengths for the next treatments coming her way. 
Sending tons of hugs and strengths your way,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: New to the website

CS
So sorry we have to make your acquaintance here but welcome aboard.  This is a very caring and helpful site.  Home hospice has to be scary, waiting for new treatment options.  Prayers for your Mom and family.  Stay strong.
Karen

Wishing all God's blessings!

Re: New to the website

Thank you to all that replied.  It is so helpful to know there is such a wonderful support group out there.

Re: New to the website

Welcome to our Cc family! Its always sad but good to welcome a new member.
Your mother is very lucky to have a caring, loving daughter as yourself. Don't be afraid to ask questions as you have so many knowledgeable friends here. Our thoughts are with you and your family.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: New to the website

Welcome,

You are in the right place. There is so much support & knowledge here.  This is a place no one wants to have to come to but that everyone is glad that they are here.  You & your family are in my thoughts & prayers.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: New to the website

Welcome, you are among friends, just want to make sure you have seen the Medical Updates section of the website, it is under the Cholangiocarcinoma tab, see:

http://www.cholangiocarcinoma.org/medicalupdates.htm

Patty

Re: New to the website

Hi CS,

Many thanks for sharing your story. I've also only recently just joined this site and it is truly a wonderful website with lovely people that are so helpful and have given me so much support in the very short time I have been here.

I know what you mean about being scared nearly everyday, I feel that way too and having to deal with this is very new to me, but I have to be strong for my dad and I want to do the best that I can in caring for him. Its good to hear that your mum has such wonderful family and friends that are there for her and are supporting her through this.

My prayers and thoughts to you and your mum.

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

9 (edited by JeffG Sun, 28 Sep 2008 05:08:43)

Re: New to the website

Welcome CS,  So sorry to here about your Mom. Like you said her team is perservering.  I surely hope only the bestest of out comes.  This disease can be so unpredictable in treating some times.  If you need help trying to find out any particular information, Don't hesitate for a moment to ask.  Members are ready and willingly to help, if we can.

God Bless,
Jeff G

Take it to the Limit,One More Time! (Eagles)