Topic: 3 years- non-resectable
I wasn't going to post since I'm not the patient and many already may have read about my mother. However, yesterday was her 3 year anniversary since diagnosis and it coincided with her 57th wedding anniversary. Although we only found out a week or so afterwards, on Mom's 54th anniversary she got the news. Later we were told that Mom and Dad spent the evening putting on music and dancing together in what they thought would be their last anniversary together (she was a young bride at 19- wanted to either become a nun or have 6 children).
Mom went to surgery in Nov 2013, They came out to us in the waiting room 3 hours later and said it couldn't be removed (4x6 cm ICC tumor). She recovered from surgery and went through 3 cycles of Gem/Cis. In Feb 2014, first SIRT (y-90) treatment. It killed much of the tumor. However, we pushed to have a second treatment, and in Nov 2014, zapped it again with Y-90. Since then, she has no evidence of disease (NED) . We now go every 6 months for scans (and she still has her port flushed regularly), but as time goes by, we're more and more optimistic that the cure they said wasn't possible without surgery, may be a reality. Time will tell.
Best wishes to all,