Re: ELEVEN YEARS

Thank you. You are very lucky.  According to many scientific research Cholangiocarcinoma is considered to be an incurable disease.  What is the name of the surgeon ?

“What does not kill us makes us stronger.” – Friedrich Nietzsche

Re: ELEVEN YEARS

His name was Dr. J Michael Henderson at the Cleveland Clinic, I received a letter announcing  his retirement about a year ago. He was an older doctor when he did my surgery eleven years ago almost to the day (01-26-2006) and my ERCP doctor referred to him as "the very best" so I chose him.I am glad I did...I will be posting more about that milestone in 5 days,  Pat

Senescence is a beautiful thing....

Re: ELEVEN YEARS

Here it is, January 26th, it is even a thursday just as it was 11 years ago. How time has passed, even with the uncertainty of the next month or year. I am pleased to say there is no bad news here, just good, I have actually started addressing all the little things people without cancer do ( go to the dentist, the dermatologist, oral surgeon, all kinds of doctors, PCP) and nothing related to cc. Wow, imagine a whole year and no issues at all wit cholangiocarcinoma. It is wonderful to say to the world that sometimes it goes well, know that it CAN. I am getting older, and to some it might sound like a complaint, but here it is just a statement of the fact, a proclamation maybe, but not a complaint, I am Patrick, I had bile duct cancer in 06' and I am here to show the world  that this cancer can be surgically removed and a normal happy life can be had. It is getting hard to remember all that I went through. There is eleven years of living life between now and that surgery, The thing I struggle with most is patience, Living with uncertainty makes you always in a hurry to get things done. There is, it seems, an underlying rush at all times, and my mind goes into hurry up mode if I pay no attention. My advise, as a long term survivor is this....Slow down enough to read life's roadsigns, as always being in a hurry equates as stress. So there you are, slow down, enjoy the life you have...it may be longer and better than you ever dreamed it could, god bless all of you, Pat

Senescence is a beautiful thing....

Re: ELEVEN YEARS

Dearest Pat, BRAVO, BRAVO! I know you worked hard and did everything right and now you are an honest to goodness MIRACLE! Yes, life is for the living even going to a Dentist! I am so excited to meet you next week.
LIVE every moment!  LOVE beyond words!  LAUGH very day!

THANK YOU FOR LOVING ME! Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: ELEVEN YEARS

Hi Hercules,
You have an incredible story, and thanks for sharing.  Hopefully we see more cases like yours in the future.  Also, this includes people who are unable to get surgery as you were able. Sorry if you have mentioned this, but what is the anti inflammatory drug you have taken?  Did you follow a strict diet?

Thanks again, and hopefully we have more like you sharing stories.

Re: ELEVEN YEARS

Hello positivity, I initially quit eating fried food, pretty much all fried food, just boiled, baked or grilled, steamed, and no deep fry, pan fry, or alcohol for a year. I lost eighty pounds and I have kept it off for ten years. I began drinking alcohol moderately after about a year which seems to stimulate bile production. The pill is Meloxicam and I take 1 a day.  I started with 7.5 mg. pills, and later upped the dose to 15 mg. pills. They are hard on the stomach and must be taken after a meal. They open up the bile duct and have helped me avoid dealing with a stent. I eat healthy, you get sick of salads but there are a lot of vegetables out there too. I make a stir fry with canola oil. I love rice and pasta dishes, and eat what I like with common sense. I hope I answered your question, I have appetite problems and cannabis helps me eat more and more often. I actually have difficulty keeping my weight up, perhaps because bile is a digestive enzyme and when it is released at the wrong time nutrients aren't absorbed well, and sometimes I eat like a horse and just barely keep my weight up, I call it sport eating.  The elderly woman I help can't believe how much I eat and how thin I am, 160 lbs. and 5' 11"  I feel this is a good weight and wouldn't want to be any lighter. That is my dietary story, take care, Pat

Senescence is a beautiful thing....