Topic: Short, infrequent bouts of shaking and an update on my Dad.
My dad came out of hospital a few weeks ago after being treated for CC with PDT treatment. The treatment went well and he has now been home for a few weeks. A week or so after the initial laser treatment of the cells, he suffered a bout of shaking lasting not very long but enough for it to concern him. One of the Doc's at the hospital didn't think it was anything too serious and felt it might have something to do with the liver. This did not happen again during my Dad's time in the hospital and so nothing else was done to look further into the matter. All the tests my Dad underwent were showing excellent progress after the initial laser treatment.
Since coming home, my Dad has experinced this same, short bout of shaking lasting about 15 minutes. This does not overly concern my Dad, but when my Mum and I see it it does worry us since we do not really know why it happens. I wonder if it has anything to do with tiredness? My Dad is not sleeping at night since coming home, despite being prescribed Diazapam last week. He can sleep for about 3 hours very easily in the afternoon and again in the evening, but can not at night. Tomorrow, someone from the Maggie's centre at Ninewells hospital is coming to see Dad for his first session of reiyke massage to try and relax him so hopefully that will have some benefit for him.
Dad did not sleep at all last night or this afternoon as he had a visitor and after he had his evening meal, he had another bout of shaking before going to his bed for a nap this evening. This makes me think that maybe this has something to do with being really tired. My Dad has always been a very deep, heavy sleeper with no problems at all in getting to sleep and this not sleeping regularly over the last few months had really hit him badly. He barely slept at all in the hospital. Has anyone experienced this or has any idea why it may happen?
As far as the PDT treatment recovery is going, on Sunday he went outside with the glasses, his hat and a glove on one hand and a paper bag with a hole in it on the other hand. The hole allowed a small part of his skin to be exposed to direct light for 15 minutes whils the rest of his body was covered. Well after 24 hours, that part of the skin turned red like sunburn so it tells us that he is still very sensitive to direct light and that the Photofrin is still active in all his cells. It doesnt look like very bad sunburn, but none the less, his skin still reacted to the light so he has to be fully covered up for another 2 weeks before trying the test again. The specialist warned us that this may happen after this test and that everyone reacts differently to the PDT treatment recovery so it is not really a major worry. My Dad is not downhearted about this but I think he was looking forward to going out without his gloves on.
Many thanks for taking the time to read this far and any experiences or suggestions will be very much appreciated.
Best wishes to you all.