deadlift....so sorry to hear of the nearly useless trip to sloan. Is the oxy controling her pain?
I often wonder about the issue of hydration. We are to stay hydrated but as in your wife's case accumulation of fluid makes her uncomfortable.
When is the next Scan scheduled?
Also, I think you wife would benefit from palliative care. Palliative Care is provided by a specially-trained team of doctors, nurses and other specialists who work together with a patient’s other doctors to provide an extra layer of support. It is appropriate at any age and at any stage in a serious illness, and it can be provided along with curative treatment.
See Karen's suggestions:
Palliative care should be implemented at the beginning of any serious or life-limiting diagnosis. It restores control of decisions to the individual.
Palliative care practitioners work with individuals to control symptoms related to the illness, or the treatment. This includes pain, nausea/vomiting, appetite and taste changes, nutrition, etc. With any diagnosis that is serious, a provider team should be established to care for the individual holistically. This may include a medical oncologist, surgical oncologist, radiation oncologist, palliative care physician/nurse practitioner, social worker, nutritionist, clinical nurse navigator, and others.
The following podcast is an excellent explanation of palliative care/symptom management, and is meant to help explain how individuals and caregivers can care for themselves throughout their journey.
https://soundcloud.com/get-palliative-c … -diagnosis
-Karen, BSN, RN, CHPN
Thinking of you and sending tons of good wishes your way,
THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER