You are doing everything humanly possible to get the absolute best care for your mom, including researching information on nutrition and alternative treatments that could help. Family is a part of the care team, and in my opinion, the patient and family are the most important members of this team. You are doing an extraordinary job from what I have seen here on the board, and the love you have for your mom and others is apparent to everyone through your posts! I very much enjoy reading the information you find. :-)
If it seems like I post on palliative care a lot, it is probably because I specialize in this type of nursing, but also because symptoms can be so distressing even at the time of diagnosis.
This is not only with cancer, but for any serious illness. Helping people to feel better on a day to day basis during their treatment (or after) is very important to me.
In my experience, quality of life is improved when the whole person is cared for...mind, body, and spirit. Palliative care practitioners are experts in managing pain control, nausea and vomiting, nutritional issues, depression, anxiety, impaired coping, and so forth. When people hear "palliative care" they think hospice. Hospice is a form of palliative care, but palliative care can be given to those who do not have a terminal diagnosis. Palliative care can be given to people with diabetes, heart disease, dementia, chronic pain, etc. Think of it as a doctor who manages symptoms.
Additionally as Gavin so wisely said, there isn't a carers manual out there. It is a learning process, and things change day to day. Cholangiocarcinoma is not an easy cancer to figure out, the learning curve is huge.
I remember very well what it was like when my mother in law was diagnosed with intrahepatic cholangio. There I was, an oncology nurse and I felt like I didn't know anything! The emotions were overwhelming.
We are all here for each other though, Tia, and please do not hesitate to reach out to us.
This information is not intended nor implied to be a substitute for professional medical advice. If you have questions or concerns, please consult your physician or health care provider.