I am so glad to inform you that I was selected for the Phase 2 clinical trial of Incyte Corp experimental drug INCB054828 for CC with the FGFR gene alteration. For details, see:
I have taken the drug (just a pill) for the last 5 weeks. I have experienced absolutely NO side effects (which is such a contrast from my experience with the chemo I have had a few months ago with horrible side effects and weight loss). Instead I was pleasantly surprised to feel significantly positive effects of increased appetite, increased energy and the mouth taste (that had become bad after the chemos) returned to normal. Better appetite and better taste has resulted in weight gain (I have been a very slim guy all my life, then I started losing weight and appetite a couple of years ago, then suffered drastic loss of weight after taking chemo). so weight gain was such a welcome surprise.
After 5 weeks of treatment I went for a CT scan. It was compared to the scan at the start of the study. I was thrilled to find that my tumor had shrunk (from 7cm x 6,7 cm) to 5.9 cm x 5.2 cm.
That's a huge reduction in 5 weeks, ...with NO side effects.
I feel so positive about this drug that I hope it will fully cure my disease at this rate.
Actually, I felt from day 1 that this drug was restoring my GI tract to the normal state.
I am writing to let other CC patients know of this powerful drug, how successful result I have experienced of this experimental drug that has started in phase 2 in January this year (2017) and I participated in the trial starting in April. Any one with CC with FGFR gene alteration - please find the nearest trial site, it can be your life saver. Its a multi-site trial at 36 locations across USA. still recruiting new patients.