I'm not sure how much weight my MIL has lost since diagnosis, but I'm going to try to find out. I know it's been a lot, and I would say 25-35lbs easily. She does have 2 stents also. Hard to keep up with everything since we live about 2 hours away.
I think that is right about the drs. They treat with chemo and not so much nutrition. My MIL's oncologist nurse was very helpful on the phone though and suggested some things. Problem is my MILs tastes have changed and she no longer like chocolate (which she used to love), she has never been a fan of vanilla and dairy give her gas, so we've given her a smoothie recipe for her sister to make for her and she likes that.
We bought her all the smoothie supplies so she could have them often. She seems to have early satiety also. Eating one piece of bacon, a tiny bit of eggs and 3 or 4 bites of a biscuit for instance. As long as she's eating though, that's good. She had stopped eating for about a week due to constipation, bloating and gas a week or so ago. She seems to have made it past that with just a little bloating here and there, I'm sure depending on what she eats. She does have an appetite, but she may doesn't eat very much.
I noticed at our last visit with her that the skin on her forearms just sort of hangs. I don't know how to describe it, but it's like she's lost so much weight (in her arms even) that her skin is sagging. She was wearing a house dress/moo-moo type thing for comfort (she can't stand to wear things that are up against her skin such a bra if she doesn't have to) It was odd to me and part of why I am looking for nutrition and supplement calories for her.
My MIL is now on Xeloda and we hope this treatment will be easier on her then the last chemo which was infusions she was getting. Hope her appetite increases and she can keep the constipation and bloating under control.
Thank you all for your input. I am glad I found this site to get info and vent when I need too.