Topic: Help for patients in the UK
Many of you read with interest the post from Prof. L. I have been corresponding with him for the past few days.
We would like to ask for your assistance, especially those of you who are residing in the U.K.
A proposal goes before the UK's Department of Health next week, asking that 2-4 National Centers for Cholangiocarcinoma care be set up in the UK. This would mean streamlining many processes and having access to the best possible care available, correct equipment, facilities and trained personnel for Cholangio patients.
It is important that the Ministers of Health understand the difficulty of the current patient journey. They also need to know that there would be public support and interest, particularly from families that have been touched by cholangiocarcinoma.
If this would be of interest to you and you can share some of the difficulties you have encountered getting good care, please send me a detailed e-mail which I will then forward to those who will be taking this proposal to UK government officials.
Any information you would like to share can be sent to firstname.lastname@example.org
Thanks so much!