Topic: rough week - just need someone who understands to know....
I diagnosed Mom in June of this year. (see story under introductions by Cherbourg)
We've had a tough week. She's 77 (still works full time) and has stage IV CC with lung mets.
She's been doing great. AFP levels dropped from 561 down to 182 with four sessions of gemcitibine and oxylaplatin(going every two weeks) and nexavar twice daily. She usually has chemo on Monday and off to work she goes on Tuesday. No side effects except for some mild cold neuropathy that anoys her in that it messes up her milkshake snack and cold drinks for a day or two.
On Friday she went to the hospital in Atrial Fib, with a pericardial fluid and lots of pain. She had a pericardial window procedure to remove and hopefully keep the fluid from reforming. Her A fib is unstable and apparently the drug for pain they were using caused her to escalate into major delusional/psychotic problems today after surgery.
Today she was completely out of her mind, from seeing conspiracies everywhere, all the way to being terrified that she was being poisoned. This got worse as the day progressed. Talk about a rough day. As it escalated I called for a medication review with the heart staff. We've switched to Fentenayl so hopefully that will help.
I guess I just need to vent. It's hard to watch my Dad watch this awful disease wreak it's havoc. They've been married 57 years.
I simply hate this nasty disease that I diagnosed. Working in the medical field has it good points but knowing more than you really want to stinks! I decided it would have been much more fun to use the odds of having CC and parlay that into winning the lottery!
On top of everything else my daughter's wedding dress came in so I will leave the hospital to go with her to have it fitted tomorrow. With a wedding in December of this year I've decided to look into cloning myself............. Hopefully I'll still be able to speak in complete sentences by November!
It's like being on a roller coaster!!!!!!!!!!!!!!!!!!
Happy event/ unhappy event/ good days/ bad days/ knick knacks/ paddywhacks give the dog a bone............
Now I know I'm tired after the above! I think it proves my premise that Chemo brain can be contagious. Gonna grab some sleep here at my parent's house and head for the hospital again tomorrow.
Thanks for listening.......
"A prognosis is simply an audit of how truly precious each day is. Live each day to the maximum, celebrate what was, and what is - Don't spend your life looking forward to what will or might be." .... words of wisdom from my beloved son on hearing of his grandmother's CC prognosis.