My name is Lulu, my husband was diagnosised with extrahepatic CC on March 11, 2008, he was just 49 at the time.
We were told after several tests including ERCP, CT and PET that he was clean everywhere else. After meeting with the surgeon a week and a half later, he confirmed what we were already told that it had not spread.
In April a whipple was attempted but aborted because it had met to the liver. Very small spots on the liver.
Four rounds of gemzar and Xeloda did nothing, it actually got worse. Now on Cisplatain and Irinotecan. Husband recently has been feeling pretty good. He does have major gas pains which I'm not sure what that means and we don't get answers from his doctor.
We have decided to go off and also do some alternative stuff in addition to the chemo. Our feeling is that we followed the doctors directions to the letter last time and things got worse....so now he is taking around 30 supplements a day, essiac and sees a D.O once a week for vitamin C therapy( we read all the reports pro and con about this and he decided to got for it). We also purchased a water ionizer and he drinks about a gallon of water a day. Also completely switched his diet to an alkaline diet and eats no sugar or processed foods.
We really don't know if any of this will work, just like chemo, we don't know if that will work....and if it does, for how long.
I feel much better being able to help him in some way.
Thanks for listening
I miss you more and more everyday.