Topic: My first visit here - can you help?
Welcome! You have entered [CCF Chat] at 10:01 pm
[CCF Chat]: lpaul has entered at 10:01 pm
[lpaul] 10:04 pm: This is my first visit to this site. I am the wife & caregiver of
my husband who has CC. He was diagnosed a year ago (Nov-07) had a
resection in December of 07 and this past May had a scan that showed
dozens of tumors in his liver. Nothing has grown past his liver. He has had
10 Chemo treatments of Gemczar/Oxaliplatin and has had quite a ride. His
energy levels have dropped considerably. He has been on & off Megace and
is currently enjoying Decadron. My big question is what to expect next.
[lpaul] 10:06 pm: If anyone can read the tea leaves, please help. I am
annoyed with the lack of experience his community Oncologist has. We
have a Boston "of Counsel" at Dana Farber that we see every 8 weeks who is
very knowledgable but the day to day is beating us up.
[lpaul] 10:09 pm: Has anyone seen high Ammonia Levels in the Liver and do
you know if these are terriblly unsafe/what to do other then take Unisol or
some such other laxative? His dose for Gemzetabine has just been reduced
by 20%. Is this a sign of failure or a downturn? Whatever information or
experiences you can share I would be truly obliged. Keep the Faith and
thank you in advance for your time and care.