Topic: Foundation Meetings in Houston
I want to give a very brief update on our meetings in Houston. I am out of town for the next few days and will give a more lengthy update when I return.
We had a great meeting with Dr's from MD Anderson on Friday evening. We spent about 2.5 hours discussing cholangiocarcinoma and what we could do together and independently to make a difference.
We discussed sponsoring a National Database of cancer centers treating cholangiocarcinoma. This will be a place where physicians will input patient treatments, course of disease and other critical data, that will be accessible to other physicians treating cholangiocarcinoma. Can you imagine how amazing this will be for patients.
We are also excited to announce that this summer we will be starting the first annual fund-raising campaign for cholangiocarcinoma. We will use the money raised from this annual campaign to support young investigator grants focused on research in cholangiocarcinoma.
Also, we have added a new board member. One is loved by all of you. Marion Schwartz. Marion will continue to head up the advocacy end of things for us, but her input on the board will be invaluable.
I think Sara will update on a few more of the specifics and then you will be able to sit back and watch Rick go. He has already begun as he has added donate buttons for those who want to donate from Canada and Europe. Thanks so much for your patience with this, we are trying to make things as easy as possible for everyone.
My heart feels like it could burst. It could not have been a more encouraging meeting and I got to spend a weekend with people I adore, serving more people that I adore. Who could ask for more than that!
Love to you all