Hello Barbara......I would like to follow Kris in welcoming a newbie to this site and although, as you may have seen from previous postings I wish we could have met under better circumstances. But, here we are, and together we stay. To answer some of your questions:
The Cholanciocarcinoma Foundation brochure describes:
What are the risk factors for developing Cholangiocarcinoma?
Research has shown that some disorders may increase the chances of developing cholanciocarcinoma. Disorders leading to increased risk include the following:
Primary sclerosing cholangitis: chronic inflammation of the bile ducts
Chronic ulcerative colitis: chronic inflammation of the bowel
Choledochal cysts: sac-like structures forming off the bile ducts
What I have seen is that there are also other "possible contributers" leading to the formation of this cancer and you might want to "google" bile duct cancer or cholangiocarcinoma.
There are other postings on this site discussing lesions which have formed in the abdominal cavities. Seems, this cancer has a mind of his own and our JeffG describes it as liking to playing hop scotch in our body.
If you don't mind me asking: where have you been diagnosed and have you considered more then one opinion, so far?
Please, stay in touch and again a warm welcome to you.
THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER