Topic: New to the Boards

Hi there,

My father was diagnosed two weeks ago with CC, intrahepatic bile duct cancer. He is a bit of an anomaly; he is 86 yo and a 13 year survivor of colon cancer. The CC is the only cancer he has now and everyone was surprised to find this is not a return of his colon cancer. His tumor is 4 ins (11cm, IIRC) and involves 3 ducts.

His doctor has recommended chemoembolization therapy. We go to the vascular doctor to discuss treatment protocol, expectations, and scheduling on the 17th.

I am so pleased to have found an active message board of folks that I can bounce questions off of.

Re: New to the Boards

Walk....thanks for joining us and yes, this is the place to bounce off any question.  I don't think that there is anything pertaining to CC that has not been out for discussion on this board and of course, many other topics, also. Looking forward to hearing from you and sending my best wishes to your father, you and your family.

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: New to the Boards

Thanks marions! As I peruse this site, I see that Carol58 is in the same town as my Dad. It is indeed a small world.

Re: New to the Boards

Hey, your Dad's in Winston-Salem?  Who is his doctor?  If you don't mind me asking.  You're welcome to email me on the board here or just hit email under my name and send it that way.  Best wishes to you and your Dad.

Carol

Re: New to the Boards

Thanks, Carol. I grew up in W-S and live in Charlotte now.

We just saw Dr Paschold at the Cancer Center at Forsyth today. I like him. He encouraged a second opinion which I see many on here have done. I am just not sure how aggressively any doctor, or even my father for that matter, would want to treat an 86 year old with a few other health issues.

He made it sound like the chemoembolization isn't that bad, but it looks like folks on here have  tough time with it. My Dad never complains, but he said the liver needle biopsy was a bear. I have a feeling if he feels like the chemoemb is too much, he might not do it more than once, right now, they think 3 treatments.

It also sounds like prognosis, shmognosis; this thing can be slow or fast, I guess.

Everyone on here has my prayers and admiration for being such stewards of their own care. My family has been there on other fronts and I know it's wearing but necessary.

6 (edited by carol58 Sat, 08 Nov 2008 20:16:46)

Re: New to the Boards

Yes, 2nd and sometimes 3rd and 4th opinions are good.  We started at Forsyth, but weren't happy with our doctor.  That doesn't mean your Dad's doctor isn't good though.  Everybody has different experiences.  I just know in hindsight, if I knew then what I know now, I would have never put up with the doctor at Forsyth.  We've gotten opinions from several doctors.Charlie had chemoembolization at UNC Hospital last year.  It was pretty rough.  I can't imagine having 3 of those done on a person your Dad's age.  Just take it a day at a time and see how the first one goes.  You never know. Everyone reacts so differently to the treatments.  If you're interested in any doctors for other opinions, I could give you some names. Take care.

Carol

Re: New to the Boards

Hi there,

I am new to this site.  My Mother was diagnosed with Cholangiocarcinoma on October 20th and passed away on November 2nd.  Everything happened so quick that we didn't have time to process anything.  I wanted to go online and read up on what she had so I can be on top of things for myself.  Family and friends have been very supportive and it helps us get by day to day.  My Mom was only 72 and her and my Dad were married 53 years.  He lost his best friend and is having a difficult time especially with the Holiday's fast approaching.  Thanks for listening to my story and I hope to hear back from some people.

Re: New to the Boards

rlunicorn....I am so sorry to hear that your Mom had so little warning about this cancer.  My heart goes out to you.   You will see that on this board others have had similar circumstances with their loved ones being diagnosed at a very late stage.  I am so glad that you have joined us and I am sure for others to be responding to you, real soon. 
My very best wishes to you and your family,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: New to the Boards

marions wrote:

rlunicorn....I am so sorry to hear that your Mom had so little warning about this cancer.  My heart goes out to you.   You will see that on this board others have had similar circumstances with their loved ones being diagnosed at a very late stage.  I am so glad that you have joined us and I am sure for others to be responding to you, real soon. 
My very best wishes to you and your family,
Marion

Thank you very much Marion for your kinda words!!

Re: New to the Boards

Rlunicorn,

I am so sorry for your loss & what you & your family are going through & believe me I know. My husband had no symptoms at all until around the middle of July of this year.  7 weeks later he was gone. He was positively diagnoised with CC on Aug. 26th & passed away on Sept. 2. He was only 62 & had no serious health problems before this hit us.  We met 45 years ago & would have been married 42 years next January. We were everything to each other & did everything together. I, like your Dad I am having a really hard time with this since it sort of caught us by surprised. Niether of us expected this to be the out come. It has been 3 months & I still find it hard to believe this has happened to us & that I am alone & a widow at 60.  Please tell your Dad he is not alone. I and many of the others here know what he is going through.  I too found this site shortly after he passed away, & although I wish I had know about it sooner, I am so glad that I did find it. The people on this site are truely the greatest people in the world. They are so helpful & supportive & someone is always here when you need them.  I am sure you will be hearing from more of them soon.  Know that my thoughts & prayers are with you & your family.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: New to the Boards

Walk - My husband had 4 chemoembolization treatments and tolorated all of them very well.  Of course he was only 37, but he had a day or two of nausea, some mild pain in the liver area and slept the better part of two -three days afterwards.  But the results were good 50% of the tumor killed.  Fred's biggest complaint was having to lay still for a few hours after the treatment.
Colleen