Topic: Can I not catch a break?

I have been back in the states since October...only one week after a clean scan and good bloodwork.

I had been suffering quite a bit from acid and pains in my neck from the acid. I took prilosec otc which gave me an upset stomach, loose bowels and painful gas. Went to my parents doctor, get sent to the hospital for stool tests (7 tests cost almost $800). Nothing was resolved. I vomited week old food. Doctor said no more prilosec but zantac instead. I have had terrible gas and bloating for almost 2 months now and I again vomitted up days old undigested food. I dont understand. I have been off prilosec for 7 weeks so this cant be from that anymore. Now even when I drink only water, I get bad acid reflux and bring up liquid when I burp.

I have about a month more in the States before heading back to Sweden. I think I will have to cut my trip short and head back home so I can get checked out. I cant imagine staying here and paying for doctors, scans, and bloodwork when stool tests cost almost $800. I am in alot of pain from the acid and I think I might be getting headaches from dehydration.

I am so worried. My husband went back to Sweden on Friday so I am going to have him contact my normal doctor and get an opinion. I am hoping it is nothing more than gerd or a hernia but of course I am now in panic mood. It hasnt been fun feeling and being sick for 2 months.

Sorry, just needed to whine and complain.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: Can I not catch a break?

Hi Kris. Wow! What a visit. Have you tried Mylenta. Its pretty gentle. But clearly that all doesn't sound right. MAN! $800 for stools! What a load of B.S.!! (couldn't resist) Do you think it could be a change in atmosphere or eating. I know when we travel I never feel the same as at home. Whine all you want thats what we are here for. Sure hope things calm down for you!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Can I not catch a break?

Kris,

Sorry to hear that things are not going well for you right now. Hopefully the doctors will figure it all out & things will get  better for you.  Feel free to whine & complain all you want. We all need to do that now and again. I will be thinking of you & hoping that things improve for you soon. Let  us know how you are doing. Take care.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Can I not catch a break?

Kris

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Can I not catch a break?

Kris, I didn't know you were still in SC.  I'm so sorry you're having such a rough time.  Go ahead and whine and complain all you want.  I wish I had more to offer - just a big ole' hug.  Let us know what your husband finds out from your doctor. 

Carol

Re: Can I not catch a break?

hey kris,

sounds like it may be related to your change in diet??????? you said it's been around 2 months and that's about when you arrived in the states.

perhaps it has to do with processed food, or just different food.  is there any way that you could get your hands on some enzymes?  i take a prescription drug called creon 10.  although, i have to say i still suffer from gas issues. 

i agree with marions, try bland food and see if that helps.

you poor thing.  i admire you for traveling a great distance to spend time with your family. 

wishing you comfort,
barb h

Re: Can I not catch a break?

Kris - I'm sorry for being a bit clueless here, but did you have a surgical resection or the whipple?  I cannot remember.  I know others that have had the whipple that have had extreme digestive issues post-surgery.  Perhaps some of your current digestive issues are associated with fall-out from the surgery?  I imagine that your system is hyper-sensitive to changes at this point, and agree with the others that eating US food may have a greater impact on your digestive tract. 

American health care sucks.  It's unbelievable that simple tests end up costing so much.

30-something caregiver

Re: Can I not catch a break?

Hi Kris,

Sorry to hear that you've been having such a rough time during your visit. Please vent all you like here.  We're here for you.

G

Re: Can I not catch a break?

Kris

I'm sorry to hear about all of your problems...it sounds so miserable, I can't imagine.  Very worthy of a lot of complaining I think!  I just had a few thoughts.  I was wondering, as mentioned, if it could relate partly to a change in your diet since you've been here.  Marions suggestion of asking your doctor about Reglan (Metoclopramide) is a good one too, I think.  It would help your stomach empty more quickly and might help the gas as well...also can be quite helpful for nausea.  The other things that I've seen help similar problems are probiotics to balance out the intestinal flora (bacteria) and gastric enzymes which would help in digesting the food in your stomach.  Both can be obtained at any nutritional supplement store. 

I certainly hope something starts helping.  Let us know what your doctor back in Sweden thinks...the one here certainly didn't seem to be of any help to say the least!

Jean

Re: Can I not catch a break?

Thanks everyone. I am so miserable and so scared. My husband went back to Sweden on Friday and my mom doesnt want to talk about my fears as I think she is scared to.

I dont think it is what I am eating. The truth is I have basically stopped eating since Sunday because the urge to vomit is so bad. For the last three nights, I have been up vomiting and having loose stools. I cant even get water to stay down now. I have not really urinated in over a day. I am waiting for my Swedish doctor to get in touch but I think I will have to call my parents doctor again and possibly go to the hospital. I think I have lost over 10 pounds in 6 weeks...not good. The worry has started to set in and it driving me crazy. Vomiting was the only symptom I had before I turned yellow the first time.

I am not sure if I had a resection or whipple. The removed part of my liver then attached my liver directly to my intestine.

I wish Hans was still here and I wish I knew what was going on. It is difficult being back in SC when all my friends have moved away and my parents are not able to let me talk and voice my fears. My mom just got back from the doctor with a suggestion for a medicine for me and mom has headed out to pick it up. Hopefully, it will settle my stomach enough to get down some fluids.

Sorry...whining again. I am just lonely and scared...best to ignore me for a while. I dont have Peter's calm or Jeff's strength...do those come with being a man? smile

Thanks again everyone.\
KRis

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: Can I not catch a break?

Hi Kris

Sorry to hear you are having a hard time of it.  Just remember that you had a clean scan in October.

Just a thought, could your current gastro problem be related to the problems you had last year?  I think you ended up calling it "sludge".   I am also inclined to go along with everyone that it could well be to do with a change in diet (and quantities???).  As someone who used to regularly travel to the States from Europe I know how easy it is to overeat, plus there are so many dishes that have a lot of dairy product in them.

As for your neck pains, well, yes, there is an association between the cancer and pains in you shoulder area.  Jeff recently posted about it.  But I find I get sore shoulders if I sit at the computer too long.  Is that a possibility?  Also, you are on holiday, so are you lifting heavy suitcases or shopping bags or plates of burgers and chips?

Final fear - should I stay or should I go?  We talked earlier about the problem of not having travel insurance and presumably, that is your position.  Being charged $800 for small scale tests through the family doctor presumably means you are not going to get any favours.  So the last thing you want is to have to have treatment in the States.  On the other hand I imagine you want to spend at least Christmas with your parents.  Is your return ticket very flexible so you could get a seat back to Sweden at very short notice?  If not, and bearing in mind the time of year, it may be prudent to arrange your return ASAP.  But what is the family doctor saying about your tests?

Wherever you are, have a wonderful Christmas.

Ron

PS
I really looked for your comments about the Kilties, but nothing?  You must be feeling ill right enough.

Re: Can I not catch a break?

NO!  Strength and calm do not know a gender! You are strong you just have something big that you are contending with right now. Is it out of the question to fly back to Sweden? That would mean you could be with your doctor and husband in 24. I don't believe you had a Whipple. With a Whipple the whole stomach is re designed. They leave out the gall bladder and the duodenum and  reattach everything differently. You need an architect. Hope you get some resolve soon, I would be scared too so do not apologize for that.  Keep us posted.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Can I not catch a break?

Kris

Obviously your latest posting and mine were being done at the same time and crossed.  Had I read your one I may not have been quite so flippant.  But I still think you have to hold on to the fact that you had a clean scan.

Keep strong.

Ron

Re: Can I not catch a break?

Kris - could you please remind me again where your parents are located?  I recall it being one of the Carolinas (I think North Carolina), but no clue on city.  Are you anywhere near Raleigh-Durham? 

I wish I could help provide peace for you.  I cannot imagine the feelings you are having right now.  I do not think that Jeff or Peter's skills are indicative of males only - those two men just happen to have it in spades.  Maybe one or both of them will hop online and share their secrets?  smile

Big hugs to you - many good thoughts heading your way from Texas.

30-something caregiver

Re: Can I not catch a break?

Deares Kris....no way - we will not ignore you.  And, you do have plenty of inner strenghts but, it comes in other ways so please, don't undervalue yourself. 
Kris I don't understand either what is going on with you however, if you are not holding down any water then what are the odds for you to be urinating? Also, the loose stools don't seem to fit the picture of what we have seen on this board for the past 2 years. 
Please, stay in touch with us as we need each other.
Hugs, hugs, and hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

16 (edited by JeffG Wed, 10 Dec 2008 14:12:56)

Re: Can I not catch a break?

Kris ...Sorry to hear about your problems.  As I reviewed back through your post all I kept seeing is taking  and trying different ant-acids.  Then when when you mentioned feel like vomiting and loose watery stools.  My suggestion is stop all the antacid stuff ,as to much can be an over dose effect.  I recommend a good ole fashion enema and drink plenty of fluids. It sounds like a bowel impaction to me.  Magnesium citrate probally need a prescription from the doctor for it.  Drink half bottle and if nothing happens in 4 hours drink other half.  I had this same symptoms 2 weeks ago and it did the trick, then stay on otc stool softener for a while.   That is my 2 cents of no licened doctoring.  I really think you have over done the ant acids  which you need  acid to keep your stool soft enough to travel through your small intestines.  Wish you the best Kris.
God Bless,
Jeff

Take it to the Limit,One More Time! (Eagles)

Re: Can I not catch a break?

Kris,
i agree with Jeff. My husband had the same symptoms as you for several weeks hen he first started his treatments. He could not keep anything down!! They kept giving him IVs and zofran etc and finally discovered that his liver had abcessed and blocked off his colon so nothing could go through. As soon as they drained the abscess he was fine. I would definitely check into the possibility that you are simply clogged up!!Try what Jeff suggests and see if that works before! Sorry you are so ill. I hope you figure things out soon. Take care. Mary

Re: Can I not catch a break?

Kris,

I think I would lean toward going back to Sweden where you can be with your husband & your doctor there, but that is a decision only you can make. You will need to determine what you feel is best for you.  I don't have much faith in the US health care system. 

Of course you are scared and lonely. Just come here & say what ever you want or need to. We are not going to ignore you.  All these decisions to be made & when you are so ill, it is hard to even think.  I am so hoping that things will improve for you soon. Please let us know what is going on. I am wishing & hoping for the best for you.

Lots of Hugs & Love,

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Can I not catch a break?

Kris,

I can't ignore you because I need you and we need you and the tough stuff you're made of! I also know what worry can do to a stomach and when I was a kid I suffered migraines that caused some pretty violent projectile vomiting so I know you are feeling like the toilet is your only friend but please know we feel your bodily (mal)functions and we're hoping that Jeff and Mary are right and the blockage can be cleared up soon.

Patty

Re: Can I not catch a break?

Dear Kris,
This is so horrible that your holidays are being ruined like this - I feel so bad for you! You're always so incredibly strong, because you ADMIT when you're terrified and you need a hug - that's a strength that many people wish they had.
I know this is probably a dumb suggestion, but everyone in the northeast here is having terrible bouts with "stomach flu"  - not actually the flu, but the kind of 24 hour virus that hits you like a load of bricks and usually goes away in 24 hours. Except, this year, a lot of people have it for 2 weeks or more, and I've been dreading catching it. Just thought I'd throw that out there - a virus? Well, I'll be hoping that's the case with you. Keep us updated and vent all you want!
JoyceM

Re: Can I not catch a break?

Kris

You sound so miserable...I just feel so badly for you.  Be sure to get in enough fluids (something with electrolytes like Gatorade) and if you can't, you really should go to the ER (I know more money!) and get some anti-nausea meds and some IV fluids.  Dehydration can really effect not only your blood pressure and electrolytes, but your kidney function as well.  I think you need some immediate attention about this.  We can guess a lot of things almost all of them having little or nothing to do with the CC...remember clean scan in October!  It could be a virus as Joyce suggested or even a partial bowel obstruction from adhesions.  It could be many things but I think you really need to get it checked out now.

I'm just very concerned.  We're always here for you to complain to but I'm just quite concerned about all these symptoms you're having.  Please let us all know how you're doing Kris.

Jean

Re: Can I not catch a break?

Hi Kris,
   I don't have anything to contribute medically, just wanted to say I am thinking about you and hope you solve this soon - and that it is easily solvable. I am sending a prayer your way.

Joyce C.

Re: Can I not catch a break?

Dear Kris,

Any sane human being would be worried and scared!! So please don't be hard on yourself and think you "should" feel different-- the way you feel, is the way you feel. You are incredibly BRAVE-- brave doesn't mean not being scared, it means moving ahead anyway!

Where would you be more comfortable and have more people to help you-- in Sweden or in NC?

Just remember that all of us, all around the world, are showering you with warmth and prayers.

A hug from

Kristin

Peace, hope, and healing to all!

Re: Can I not catch a break?

Prayers for you Kris,
Hope you get some answers that are helpful.  god Bless.  Mary Anne

Re: Can I not catch a break?

Magnesium citrate  did the trick for my dad too.  He suffered quite a bit with bloating and indigestion and burping, no vomiting.  I believe you can get it OTC