1 (edited by stacie Tue, 23 Sep 2008 19:09:24)

Topic: New brochures

We have brand new tri-fold brochures.  They look amazing!  We would like you to help us get them out to your oncologists, radiation oncologists and surgeons.  We need to get them to your nearest cancer center, to the GI specialists and the oncology nurses there.  You can also take them to any cancer support, outreach organizations.

Getting this information to the people who can get it to the patients is very important as we start to expand our reach.

Please send me your mailing address at stacie.lindsey@cholangiocarcinoma.org.  I will send you a stack of brochures that you can distribute.

If you've been wanting to do something to get more involved, this would be a great way to start.  You don't need to be nervous if you've never done anything like this before.  All you need to do is ask the right questions so that you can get to the right people.  In each stack of brochures I send out.  I will include my card.  You can simply refer them to me if they ask for more information than you have or feel comfortable talking about.

If you have family members that would like to assist in different areas of the country or world.  Send me their information, I'll send them a stack.

Also, if you have the name and mailing address for any of your GI physians, send that and we will mail it to them directly with a cover letter from the foundation.  If you have any other ideas.  Let us know.

I'd like send/drop off 10-12 brochures at each place, so let me know how many you'll need.  Obviously, places that are seeing a lot of cholangiocarcinoma will need more than that so be sure to let me know how many you think you can distribute.

Thanks for your help.  I'm looking forward to spending quality time at the post office! 
Stacie

Re: New brochures

Stacie, this is fabulous!!!  I sent you my address under your e mail. I'll be CCing you!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: New brochures

Such wonderful news. I wish I could help out, but there is nowhere here for me to distribute! What a wonderful idea, though. I also like that it gets us all involved.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: New brochures

Stacie,

This is great. Just sent my address.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: New brochures

Stacie,
Thanks so much.  The more opportunities to help other people, the better.  And thanks for attending the conference in Boston and giving us some insight as to the progress.  I will send you my address.
Karen

Wishing all God's blessings!

Re: New brochures

If you'd like to see the brochure, the .pdf has been uploaded to the "Newsletter / Publications" page under "Foundation" above.

Thanks!
Rick

Re: New brochures

Thanks Rick. The brochure looks great!

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: New brochures

Hi Stacie,
I would love to have some brochures, and I sent you e-mail but it was returned.  I double checked the address.   Do you have an alternate address I could try?

- Suzanne

Re: New brochures

You can send it to me at stacie@cholangiocarcinoma.org or stacie.lindsey@gmail.com

Thanks so much!

Re: New brochures

The brochure looks fabulous!  You guys did a great job.  I have a question...if Cholangiocarcinoma Foundation is a non-profit organization how come the donation would be taxable?  Is this another "lovely" loop hole the government has devised to only help certain organizations?

Wishing all God's blessings!

Re: New brochures

All of the donations to the foundation ARE tax deductible. 

This was a mistake and of the 100s of times we went over this brochure I can not believe we some how didn't catch that - Love you Karen.  We only printed enough this first run to go to ASTRO.  We've been so focused on the medical information and making sure it was perfect, somehow we missed that error.  We had a couple of other small things to change as well.

Rick will make the changes and our new printing will be out in 7-10 days.  So, those of you who will be helping distribute, you can expect to see your packages arriving soon after that. 

Thanks to everyone so far who has asked to help distribute the brochures, I was so excited by your response and every thing you do helps in a big way. 

Thank you, thank you & thank you Karen especially, for catching that.

Re: New brochures

You are certainly welcome...must be my printing background coming through.  Looking forward to distributing the brochures and making more people aware of our blight.  Thanks for all you hard work.
Karen

Wishing all God's blessings!

13 (edited by raye Wed, 29 Oct 2008 13:47:04)

Re: New brochures

Stacie.

Would it be possible to have some of these brochures sent to me here in Canada?? I have a new cancer foundation here in my hometown, as well as The Cancer Society of Canada office here that I have been in contact with throughout the year.

They know my story and I would like to get some of the brochures to them, and develop something similar for Canadian CC patients so I can direct them to cancer centers here in Canada as well as those centers in the U.S.

By the way, I'm a survivor of CC and was successfully transplanted at the Mayo Clinic in Rochester Mn. by Dr. Julie Heimbach. More people need to know about this procedure and I hope to help with that too.

Thanks,

Raye Field
Chatham Ontario Canada

I'm a passenger on planet Earth and God is driving.

14 (edited by marions Wed, 29 Oct 2008 23:46:10)

Re: New brochures

raye....I will make sure for Stacie to receive this although, she might already have seen your posting.  Just in case I will copy and send it to her, also.  I know that she will need your home address.  You might want to e-mail her  at: Stacie@cholangiocarcinoma.org.  This way we we will be absolutely for her to receive this.  And, thank you from the bottom of my heart for distributing the brochures.   Your idea of developing something similar in Candada is a wonderful one.  Thanks again.

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: New brochures

Raye,

Absolutely!  Why don't you give me a call.  Email me at stacie@cholangiocarcinoma.org

Stacie

Re: New brochures

Stacie,  How can I get some brochures

Thanks
Lulu

I miss you more and more everyday. 
RFL 6/28/58-12/27/08

Re: New brochures

Anyone who would like some brochures to distribute locally, please just e-mail me at stacie@cholangiocarcinoma.org and send me your mailing address.  We'll get those right out to you.

If for some reason you have requested brochures and they haven't come, please send me another e-mail.

Thanks so much!
Stacie

Re: New brochures

Stacie,

I received the brochures several days ago. I'll be distributing them this week.

Thanks,

Raye

I'm a passenger on planet Earth and God is driving.

Re: New brochures

Hi Stacie,

Just to let you know that I emailed you regarding brochures, I used the email address that you have given in the posts in this thread. I would be delighted to distribute some brochures here in Dundee and the surrounding areas if there are any left.

Hope to hear from you soon.

Cheers

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: New brochures

Stacie,

I don't think I ever gave you an update on the distribution of the brochures.  Went to Beth Isreal Deaconess in the beginning of the month and Rob's radiation oncologist was very interested in the brochure and especially the foundation.  While there I was able to place the brochures in quite a few areas thoughout the hospital (since I had time on my hands during the 3 days of treatment Rob received).  Spread the word!  Thanks for providing the information.
Karen

Wishing all God's blessings!

Re: New brochures

I did get your message Gavin.  Sorry I've been out of town the last two weeks, but am firmly planted until the end of the month.  I'll be sending the next batch of brochures out soon.

Karen, great news!  Thanks for distributing the brochures.  Every little bit helps.

Re: New brochures

I received my brochures.  Thanks.  I'll try to get them distributed.  Our local clinic has a new cancer library.  Good place to display them.

Re: New brochures

I took the brochures to a meeting I had at King's College Hospital in London about my husband's treatment as a cholangiocarcinoma patient. They have agreed to give these to all cc patients, of whom they have about 24 currently, and to list the cholangiocarcinoma foundation in their own booklet for cc patients.
        I will also be contacting Hammersmith Hospital and Barts to ask them to do the same.
            Pauline

Re: New brochures

Pauline....I am so grateful to you for handing out these brochures and the positive response you have received.  It warms my heart to see the act of kindness you are showing to fellow CC sufferers at this so very painful time in your life.  My heart is with you.
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER