Topic: new to cholangio...
hello all, i've been enjoying reading and learning. my husband was diagnosed november 7 with intrahepatic cc, unresectable. lymph nodes involved include cardiac (pericardiac?) and some others i can't remember. he has finished his first cycle gemzar. 3on/1off. we sought a second opinion and got the same answers, except for this doctor would have suggested clinical trials first, which our doctor never did. however, i have searched the trials and so far found only one he qualifies for, once he's been off chemo for 28 days.
i have researched a TON. this is a crazy cancer! btw, my husband is 55 years old. he has been healthy as a bull all his life, never even a hospital stay or a special test! suddenly he had a gallbladder type pain in october, diagnosed gallstones, then the tests kept going, and here we are.
right now my big problem is cooking. i am a good cook, but it's hard to satisfy him now with no meat, no fat, no sugar. i go for pure veg and fruit, very plain and delicious, but he likes more comfort-type foods. i just don't know how to make comfort foods without butter and such! is there a suggested diet to avoid taxing the biliary system, i mean an actual menu, maybe even with recipes??
i will be reading here all the time, i'm sure. i don't know what to expect, of course, although i took care of my dad through his lymphoma and his death (at home), my 16-year old through four strokes (hospital-living not the greatest), and my mother through broken neck, back, and other issues. i feel i've been in training and now it's time for the marathon!!!
thanks to all, i know this site will be a huge support.