Topic: Info on Johns Hopkins & other treatment centers on the east coast
I'd like to introduce myself to the group after being a silent discussion board peruser for many weeks now. My name is Sarah, I'm 23, and my boyfriend is "jur777" who is 29 and was diagnosed with cc about 1 month ago while we were living in France.
We are currently at the Mayo Clinic and have seen Dr. Axel Grothey and Dr. Louis Roberts, and have been advised to go with the Theraspheres treatment. They have told us that John's cc is intrahepatic, inoperable, and transplant not possible. The tumor is about 6.5 cm, mostly on the right lobe but moving towards the left. Lymph nodes seem to be involved. Yesterday they successfully put a stent into his distended gall bladder to relieve some of his discomfort. It's Christmas Day and we thankfully got him discharged!
As we are from the east coast (NJ) we are searching for a treatment center that does Theraspheres closer to home. I have seen "Wayne" post that Dr. Kennedy in NC is the preeminent doctor for that treatment, but how about some other hospitals closer to NJ? Have any of you had or heard of experienced doctors treating CC with Theraspsheres at Sloan Kettering, Mt. Sinai, Johns Hopkins, in Pittsburgh or Philadelphia perhaps? We are looking to get started quickly, and of course closer to home would be best We could still do this at Mayo if we cannot find another hospital.
Thanks for your input, this message board has been invaluable to me over the last few weeks.
Hugs and thanks all around,