Topic: It's a New Year
I have been reviewing this site since my diagnosis in July at the age of 39. I am stage IV with very large tumors in my liver and metastasis in my lymph nodes thus far. The interesting thing is, I visited the doctor not because I had any symptoms, but because I had a feeling something was wrong with me. The only symptons I have had to date are night sweats, initial weight loss, changes in my stools and some chest pain.
I am being followed by Dr. Kaseb at MD Anderson and am receiving local chemotherapy under the care of Dr. Youman in Austin, TX. So far I have had two rounds of chemo with Gemzar and Cisplatin. First round indicated a reduction in size of the largest tumor (originally 13cm x 8cm - HUGE) and a reduction was found in the lymph nodes. Second round had mixed results. One of the other tumors had gotten larger and the largest tumor is showing signs of increased density. The good news is the lymph nodes are continuing to shrink.
Last week I completed my first round Xeloda, Taxotere and Gemzar. Overall I have felt well through with this cocktail and all of the chemo I have received. The fatigue is tough and I have had severe anemia prompting me to have three blood transfusions. It seems the Xeloda has added insomnia to the list of side effects.
I have an 8-1/2 month old daughter that just enjoyed her first Christmas. Having her has been such a joy but this disease has really put a damper on my dreams. I have a wonderful husband and supportive family and friends to support me through this. I received David Servan-Schreiber's book, "Anti-Cancer", for Christmas and read it in two days. It was very informative and made sense to me. I am changing and adding to my diet, reaching out (ie. this introduction),exercising more and begining to follow yoga and meditate. I am looking into acupuncture.
Thank you for working so hard on this site. I am looking forward to being a part. Just remember I have a little girl that will be crawling any day now! It is a banner day if I have time to check my e-mail.
Happy New Year to all of you and may we find the strength to learn to manage and live as long as we can with cholangiocarcinoma.