That's a tough question. I'm not sure what the right answer is. I think there are only a few options. One, is that you do the chemo and it shrinks your tumors or metastatic cancer enough that you become a candidate for surgery (this is rare). The other is that chemo it is used to give you more time while you search out other alternatives.
Our oncologist has always been very clear with us that modern medicine, chemo - can not cure this cancer. Now, that being said - there are a lot of new drugs out there and a lot of new ones coming on line all the time.
Personally, I think chemo can work to some degree, but it's got to be in conjunction with other targeted drugs as well i.e. Avastin, Tarceva, Erbitux - these give the chemo a boost and with cholangio you need all the boost you can get.
I also do not believe that you can beat this with modern medicine alone. I think cholangio calls for a total life change. Complete change in diet, change in thought process, change in almost every thing that affects your body.
You can kill the cancer with chemo, but in the end you have to stop doing the things that caused the cancer in the first place. Unfortunately, we don't know exactly what those things are - but we do know (from many studies) that sugar makes cancer grow - the obvious answer is not to eat anything with sugar in it. We also know that people who exercise have a better outcome - so you've got to exercise. We know that many holistic things greatly benefit those who have cancer, so you've got to seek out some of these things and begin applying them.
This is a very complicated cancer and because there aren't very many studies we sometimes feel like we are stabbing in the dark, hoping to come up with the right combination that will make this beast go away.
But, we just keep stabbing away and one day someone on this website is going to come up with the right answer or find someone who has the right answer - won't that be a great day!