Topic: What do I expect
First of all wonderful site! Thanks.
My 70yr old mom had a CT Scan and ERCP done this week. The biopsy results have not come back but the gastroenterologist is pretty sure the diagnosis is cholangiocarcinoma. He says the tumor is 5 cm, in the bile duct. He has temporarily stented one of the ducts.
I am sure over the next few weeks we will be presented with an array of options and decisions. I have been reading the postings on this forum and had a few questions:
a. My mom has a form of myositis called Inclusion Body Myositis. The gastro doc says that cholangiocarcinoma has been associated with many myopathies. Is there anyone on the forum with the same condition?
b. Her myositis makes it difficult for her to walk (legs, thighs are weak). She is slowly losing strength in her arms also. Given this, any opinions on how it affects treatment options?
c. We are seeing docs at Stanford. What are the best known locations for treatment of this condition?
Thanks for your responses. God bless you all.