Topic: New member
Hi, I am a new member to this site, but have been following it for a while.
I was initially diagnosed in late Feb. 2008 with intahepatic cholangio. I had a 40% liver resection. The surgeon and pathologist were sure the "got" it all. I then followed with what was to be 6 months of GEMZAR
chemo, but after 5 months I developed a lump in the hollow of my collarbone. So, after a scan in early OCT I learned I now have Stage IV and it has metasticized to my lungs and lymph nodes and has returned to the
surgical margin area of my liver. I was devasted, but am keeping a real positive attitude. After that scan, I started two months of FOLFOX chemo, and a scan in early DEC showed that the cancer has not spread- I hope the chemo is working. I am halfway thru my second two months and will have a scan in early FEB. But, I have found so much info here and on the internet that I that I think I want a second opinion. I did write a Dr. at UCLA- Dr. Finn and he said he would do the same treatment I am currently having, but would maybe add Avastin. Sometimes I wonder if I should be on chemo at
all, but am scared. I also read a study by Texas A&M and Univ of Washington and research centers in Italy regarding excess Seratonin causing an increase in Cholangio cell growth. Has anyone heard of that? I found the info on this site about Leptin very interesting also. Can someone tell me more about Dr. Lenz? I have seen his name mentioned here quite a bit. Nice to meet you all, and thank you to the people who started this site.
I just think my oncologist is so busy with the common cancers-he does not do any research on my particular problem. By the way, I will be 55 in April
and live in Brentwood, Northern CA.
Bless you all- Celeste