Topic: European CC community - Please help
I have been visiting this site daily since my mother was diagnosed with CC in April 2006. Her general health was very good, so the CC diagnosis came as a complete shock to us. She is 54 years old and has 2 tumors (4cm diameter) in the hilus of her liver. The tumors are on either side of the portal vein, i.e. the main vein that comes out of the liver. She lives and is being treated in Belgium. She started Gemzar infusions in May and the Gemzar caused both tumors to shrink by 1cm. However, recently the tumors became resistant to the Gemzar and they have grown again by 1cm and are continuously growing.
The tumors are pressing heavily on the portal vein. If we don't relieve this pressure on the vein ASAP then she will have liver failure. Her doctors in Belgium have little or no experience with CC and they are hesitant to operate. Does anyone know of a surgeon in Europe (or even in the States) that has experience with CC surgery and more specifically with CC surgery with portal vein involvement?
Being a research scientist myself, I realize that extensive surgery is now our only option. As I live and work in the US, I am also considering bringing her here for surgery. From what I can see, CC treatment and surgery is far more advanced in the US than Belgium.
Has anyone had experience with bringing people over from Europe for surgery in the US? CC community members, I would really appreciate any input, thoughts or advice on this matter.
I wish you all strength and courage in your battles with CC.