Topic: Inquisitive son.....
My name is Rob and have just joined the discussion board in hopes of finding relivant conversation in regards to my fathers situation.
In September of 2008, my father was diagnosed with "Stage IV" Intrahepatic Cholangiocarcinoma; to which a 9 x22 centimeter cancerous mass was discovered in his liver and 3 smaller masses in other regions in his 9th rib, spleen, and sternum.
We, as a family, are very pleased with the quality of care he is receiving at the James Wilmont Cancer Center in Rochester, New York and have been in a "quality of life" treatment program prescribed by Supria Gupta Mohile for approximately 3 months now.
I must admit that I am reminded daily of "personally" cancer affects the lives of the patients and their families.....the hope is through each of our situations that some resemblence of a "quality of life" can be achieved and strongly recommend Dr. Supria Mohile for just such in the care of the elderly.
There hasn't been a day gone by since our first introduction to her and her staff that the proper attention has been placed in the welfare and care of our father. A 79-year old gentleman who is simply "dealing" with the 'days' remaining of a good life.....they, at Wilmont, are simply making his last 'days' the best they can be.
He is about to begin his fifth series of treatment of Gemcitibine (Gemzar), to which he is fortunately not faced with any of the potential side-effects we were warned about and urged to keep them abreast of. However, he is beginning to show signs of the "toll" each series is bringing upon him as it now takes him a good 4 days to recover and feel like getting out of bed.
It's been a gradual build-up through each series of treatment and lately, we have addressed 'blood-clotting' issues.
On the positive side, again, he has not had any major side-effects.....yet I am beginning to wonder about his remaining days in regards to the "quality of life."
We meet with the doctors again on Monday to review his recent CAT-scan.....the last of such reveiled that the 9 x22 centimeter mass in the liver had been reduced to 8 x 16 centimeters, but all other sites were still prevelant and he will remain in "Stage-4".
My question: "If the prognosis isn't going to change that he had 4-6 months beginning in October of 2008 and we are concerned about his quality of life.....the treatments have 'maintained' him through the holidays, but are gradually taking away any enjoyability between treatments; then do we reduce the Chemo-treatment to give him a few days a week of anything but being in bed"???
Is that even possible??!!!
Of course I will ask the doctors on Monday, but maybe one or some of you have been through this in a similar or comparable situation.
I'm open to suggestion!
Thank you for any response or interest and look forward to chatting with any of you soon.....