Well, I had my CT scans last week and received the results this week. Not good news. The scans show a few spots on my right lobe, the side where the original tumour was located. At present, there is some doubt as to whether they are restricted to the liver or have metastasised from or to the liver. Apparently, the histology following the resection, was not 100% clear as to whether it was a primary or secondary cancer and if, in fact, it is cholangiocarcinoma. The smart money seems to be that it is cc.
So, what happens now? Well, I did suggest that a PET scan might be appropriate to determine the confines of the tumour. The surgeon thought this was a good idea. The problem is there is only one PET scanner in Scotland. He is going to try to arrange it. But this should not delay surgery, should they decide to go ahead with that. The likely procedure will be to remove the whole of the right lobe. Would that not have been a better option in August when they were so pleased that they had been able to remove just a small section? It's a rhetorical question. Even if it were the case; we all know that hindsight is always 20:20. There is always the possibility that they will open me up, see what's there and close me back up again. That is a scary thought!
Chemo is now being mentioned. When I had my original surgery I fully expected to go straight on to chemo, but that is not part of the protocol. So why is it offered if surgery is not an option? Would it not have got to any small cells that were left behind following surgery? I have to say that I am not a great fan of chemo but I guess, even if I have surgery this time, it is something I am just going to have to accept.
I am sorry if I am sounding angry and a bit depressed but this is the first opportunity I have had to let my thoughts escape. My family does not need the added pressure of me going off on one. But you dear people may well understand my feelings just now and you can always close the page if you don't want to read it. Thanks for giving me the chance to vent my feelings a bit.