Topic: Extreme edema from ankles to abdomen
My mother is now in hospice care at home, in her case chemotherapy was a BIG mistake (Gemzar and Xeloda - went 2 weeks with it, wound up in the hospital with severe anemia, some edema, cholangitis and very bad side effects that deteriorated her quality of life)
My question: she had had some edema in her feet and ankles, but yesterday it moved up to her knees, thighs and even her butt. Everything swelled up to TWICE their size. The hospice nurse told me that it may be a sign of the end, but I don't want to accept that, since she's doing so much better in other ways since I got her out of that horrible hospital. I just can't seem to find anything about this edema being a sign of end-stage liver disease. Anyone have any similar experiences? They tell me the edema may travel up her entire body as a result of liver malfunction but I don't know what would actually kill her - pulmonary thrombosis, other blood clot, ruptured varices? How long can you live with this kind of bloating? She has an appetite, has started walking again, and the jaundice is stable. Mentally she's in great shape.
Just FYI: she's stage 4 with both lobes of the liver completely covered in innumerable tumors, some mets to lungs; bile ducts okay and unblocked so far.