Topic: "Bending the rules" surgery scheduled

Well, here goes resection attempt #2!  On Feb 18, surgery then I start the long slow walk through the fire of recovery from surgery.   

The surgeon and the tumor board decided the risk is worth it (DUH!), even though there's no way to know if the liver that does grow back will have any cancer or tumors grow with it.  The whole left lobe of my liver is solid tumor and there are 2 tumors on the right side.  The 2 tumors on the right side are the reason the first resection was not done, and also the reason they are saying they are bending the rules to try it a second time.  But they are doing the surgery again because all tumors are virtually unchanged since July 2008 and my general health is very stable.  Hopefully they will be able to do RFA on the 2 smaller tumors during surgery.

I know there are several people on this site who have had resection.  I also know resection is not a cure, but will hopefully put this thing in remission.  Also, so far my bile ducts have stayed clear.   What can I expect physically while the liver grows back?    Can bile ducts be biopsied (I know the spelling's wrong)  if there is no tumor?   Any other information regarding recovery after resection will be helpful.  I've already been through the surgery but no resection so I know about the recovery from having my abdomen cut, but is there any difference if they actually resect?

Wish me luck, prayers, positive thoughts, I think I'll need anything I can get just to make it through.

- Suzanne

Re: "Bending the rules" surgery scheduled

Suzanne,

Sorry I don't have any answers for you, but I am sure others will. I just want you to know that I am happy for you that they are willing to chance it & "bend the rules".  I will be wishing you all the luck in the world. I am sending you tons of positive thoughts. You will be in my thoughts & prayers.  Keep us updated as to how things are progressing when you can.

Lots of love & cyber hugs coming your way.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: "Bending the rules" surgery scheduled

Resection can sometimes be a cure, if it's possible to remove all the tumors.

I was told after my resection that the part of the liver that was removed doesn't actually "grow back" (like a starfish grows a new arm if one breaks off) but instead the remaining part expands to take over the functions of the part that is missing.

As for recovery-- expect to do just about nothing for maybe two weeks after surgery, and then to take it very easy for at least a month after that. Try to start eating tiny amounts of food as soon as they'll let you, and get up and move around as much as you can, even in the hospital. When I got home, my first walk was ten feet to the end of my porch, but I did a little more every day and it really helped me get back to normal.

And don't think of recovering as a "slow walk through the fire." You will feel better and better every day!

We're all here cheering you on!

Krisitn

Peace, hope, and healing to all!

Re: "Bending the rules" surgery scheduled

Suzanne, you sound like a very strong woman and your attitude is the best! We have not dealt with what you are about to go through but we just wanted to let you know we are thinking about you and pulling for you. If prayers and thoughts really help there is a tremendous amount coming your way!!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: "Bending the rules" surgery scheduled

Suzanne, I hope your resection is successful and you have many, many more years to spend with your family. 

God bless you!

Re: "Bending the rules" surgery scheduled

Hi Suzanne,

I underwent a resection in October 2008. I can say that I did not have any major issues with my recovery (with reagrds to my liver) following it. My resection removed all the tumour in my liver, three lymph nodes below the liver and bile duct, which the surgeons were not expecting, thus the operation took nine hours rather than the four expected.

My main issues were with the drains which I had in each side. Whilst the drains were still inside my body they were not filling with liquid but as soon as I had them removed a lot of liquid seeped and I had bags over them for a couple of weeks.

For recovery just eat as soon as you are allowed, my appetite returned quickly and was back on a full diet only a few days after surgery, which I was not expecting.

My abdomen muscles still haven't recovered totally, they are still feeling tight but this is to be expected less than three months after surgery I guess? How long did you take to recover?

I wish you all the very best for the surgery and the future.

Tom

Re: "Bending the rules" surgery scheduled

Suzanne,
Regarding your question about biopsying the bile ducts - Gary had only a "thickening" of the bile duct wall when they did the ERCP to get a diagnosis.  The first day they did a brushing of the inside of the duct, and the second day they tried to do a needle biopsy, but there wasn't any growth to go into.  The result of the brushing was "atypical" cells, and he went on to have a Whipple which confirmed CC.  Good luck with your surgery!
Elaine

Live each day to the fullest

Re: "Bending the rules" surgery scheduled

Thanks to all for the support!  I have so many different fears about this, but I know it's my best option.   Knowing that so many people are supporting me will help me get through this surgery and recovery.  I wish I could adequately express how much it means to me.  I'll possibly be posting again before Feb 18, but if not I'll see you guys again in a few weeks!

- Suzanne

Re: "Bending the rules" surgery scheduled

Suzanne...fingers crossed (including toes) for a successful surgery.  Can't wait to hear from you.  Feb. 18 is marked on my calendar.
Tons of good wishes coming your way.
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: "Bending the rules" surgery scheduled

Yea, Suzanne!  "Break a leg!".  Oops sorry wrong scenario! Just can't tell you how many good wishes and prayers are coming your way. Even my eyes are crossed for you. Keep us posted when you can.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: "Bending the rules" surgery scheduled

Hi Suzanne

Just thinking of you tonight and wishing the very best for your surgery tomorrow!  I'm so hoping for good news for you.

You had asked about recovery from liver resection and never having had surgery before I certainly had nothing to compare it to!  I was in the hospital 8 days and out of bed the second day after surgery.  My blood count was low after surgery so that made it a little difficult with dizziness and all.  I went out for dinner (Thai!) the day after I got home from the hospital, to a farmer's market the second day, and the grocery store the third day, and worked up to walking the dogs a mile (two German Shepherds!) two weeks out.  I did consider the recovery really a "full time job".  I worked really hard at taking short walks every two or three hours, taking an hour nap during the morning and in the afternoon, and eating really well (frequent small amounts with a lot of protein).

Know that we're all sending good wishes, positive thoughts and prayers your way!  Please let us know how you're doing as soon as you're able!

Jean

Re: "Bending the rules" surgery scheduled

All -

I am happy to report that Suzanne's resection was successful!  She is 2 days out of surgery and already sitting in a chair for extended periods and taking walks down the hall.  Her doctor is extremely happy with the results, and of course, we are, too! 

Terri (her sister)

Re: "Bending the rules" surgery scheduled

It is wonderful to hear good news in the midst of this dis-ease.  Very timely too.  I am happy for you all.  Someone has to show CC who is boss!  -ljg

Re: "Bending the rules" surgery scheduled

Terri,

Thanks for the update and all the great news. I am glad that the resection was successful & that Suzanne is doing so well. Give her a hug for me and tell her there is a lot of love & encouragement coming her way. As always,   she will be in my thoughts & prayers  along with you & the rest of your family.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: "Bending the rules" surgery scheduled

WAHOO!!!!!!!!!!!!!    YEA!!!!!!!!!!!    WONDERFUL!!!!!!!!   FABULOUS!!!!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: "Bending the rules" surgery scheduled

Suzanne.... A couple big hugs coming to you!  Keep up that positive can do attitude!
Bless Ya!
Jeff G.

Take it to the Limit,One More Time! (Eagles)

Re: "Bending the rules" surgery scheduled

Thank you Terri for giving sharing this great news with us. 
Hugs to Susan,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: "Bending the rules" surgery scheduled

Suzanne, so great to hear from your sister.  Hope you have a great recovery period and out and about before you know it.  Keep on updating!

Carol

Re: "Bending the rules" surgery scheduled

Sending hugs and smiles from Sweden. What wonderful news.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: "Bending the rules" surgery scheduled

Praise be to God!  What wonderful news.  Speedy recovery and get on with life!
Peace,
Karen

Wishing all God's blessings!

Re: "Bending the rules" surgery scheduled

Hi Terri, that is great news , all my best wishes for the recovery! I was out of bed on day 2, and out of hospital on day 9.

Tom

Re: "Bending the rules" surgery scheduled

Just wanted to update everyone on Suzanne's progress - she is still recovering nicely, although the doctor hasn't mentioned going home as of yet.  She hasn't started on solid food but is getting some vitamins via IV, so she is staying healthy.  She completed 5 laps around the floor this morning - woo-hoo!  I had to hustle to keep up with her!  One major bit of news - pathology reports came back yesterday and all margins are clear!  Just writing it in this post makes me teary-eyed - I can't describe the emotion I felt - that we all felt  -when we got the news.  The sun just keeps on shining brighter every day!

Terri

Re: "Bending the rules" surgery scheduled

Terri,
Please pass on how happy I am for your sister...and clean margins to boot. I am over the moon as I bet your whole family is.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: "Bending the rules" surgery scheduled

Terri,

Thanks for passing on all the good news about Suzanne. I also am so happy for her. It must be a great relief to her, you & your whole family that things have gone so well.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: "Bending the rules" surgery scheduled

YEA!!!  We have a Miracle Man and now a Miracle Woman! I don't know what news could top yours!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.