Topic: Yet another newly diagnosed cc

Greetings!

My name is Rose and I am so grateful to have a discussion board like this to share support and encouragement and information with others going through this shocking and profound experience.

I was diagnosed with a tumor last Wednesday (Feb 18) during a gall bladder ultrasound.  It's been a whirlwind ever since.  Tumor is well advanced but apparently I still have a shot at a liver resection.

I am 45 and have been an icon of healthy living in my community--organic gardening, nourishing foods, back to the land lifestyle, much time in the great outdoors.  I have broken some bones and had miscarriages, suffered migraines most of my life but never experienced a major illness.  This has been a HUGE shock for me and all my loved ones.  I feel blindsided, trapped and a whole host of other emotions.

Have a battery of tests behind me and had a stent placed in bile duct with acute pancreatitic reaction.   Have all the classic symptoms from jaundice, nocturnal crazy-making itching, dropping weight fast, root beer colored urine, and a hard time figuring out what to eat and working up an appetite to eat it.  Suffer insomnia at night so have taken to the internet to use the time constructively.

Having a lot of discomfort and pain at stent site, from pancreas and general abdominal tenderness making it really hard to get comfortable anywhere.  And the suffering has just begun apparently.

Looking for mutual support here and am joining the ranks of all you newbies that have showed up this week.

O my Father, if it be possible, let this cup pass from me; nevertheless not my will but thine be done.  Matt 26:39

Re: Yet another newly diagnosed cc

Hello Rose and welcome to the best little club in the world that no one wishes to join. It sounds like you are already doing the right things, especially in your attitude. Attitude will really help.  This CC monster just crops up out of nowhere
and it has a mind of it's own. We are glad you found us and please use us to vent, inform or ask. When my husband itched we used ice bags and Sarna Creme. Not sure why your stent hurts so bad but certainly inform your doctor.
I just know you will get some more ideas on helping the itching.  Please keep us informed we are truly care.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Yet another newly diagnosed cc

Hi Rose,

I would like to join Lainy in welcoming you to the club. I am so glad that you found us and so sorry for the reasons that have brought you here.  You will get all the help & support here that can possibly be given.  We all know what you are going through and are here for you.  As Lainy said, I am sure you will be hearing from others shortly with suggestions for the itching.

You may want to use the search forum to get answers to some of your concerns.

Keep us informed as to how things are going.  I will keep you in my thoughts & prayers.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Yet another newly diagnosed cc

Darla:

I am also in Wisconsin.  I live in Viroqua and am going to the University hospital in Madison for treatment.

O my Father, if it be possible, let this cup pass from me; nevertheless not my will but thine be done.  Matt 26:39

Re: Yet another newly diagnosed cc

WOW! We are from Milwaukee and Teddy had his surgery at Columbia. I knew another man who went to University in Madison and was extremely happy with them! Stay warm......

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Yet another newly diagnosed cc

Hi Rose,

I'm glad to "meet" you! Your situation sounds soooo similar to mine.

I was 46 when diagnosed, lived a super-healthy lifestyle (running, lifting weights, clean diet, lots of herbs and supplements) and was never sick a day in my life. After two surgeries, radiation, and chemo, I'm still alive and doing great, five years later. My friends and family thought it "wasn't fair" that I should be the one to get cancer, after taking such good care of myself, but the way I see it, all that good self-care is what has helped me to survive this far, and I know it will make a big difference to you too.

We're all here for you, from those who are newly diagnosed to those of us who have been dealing with this for a long time. Please let us know how you're doing, and what we can do to help.

Wishing you all the best!

Kristin

Peace, hope, and healing to all!

Re: Yet another newly diagnosed cc

Rose May,
I missed your post earlier and welcomed you in another thread! But I must welcome you here too. Sorry you had to find us, but I am glad a resection is still a possibility. There is a lot written here about the surgery and what to expect so it is a treasure trove of information.

Please keep us posted.

kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

8 (edited by marions Sat, 28 Feb 2009 10:58:27)

Re: Yet another newly diagnosed cc

rose may....I am so happy that a resection is considered to be a possibility for you.  I don't believe that anyone knows why this cancer strikes especially, when people such as you, have lived a healthy type of life. 
I am wondering about a few things?  You are mentioning being in pain.  Is this due to the pancreatises?  Remember, if taken pain killers to make sure tht you will take laxatives and stool softeners to help with the digestion.  Also, once the stent has been put in place the itching will disappear and the urine should be clear again.  Have you considered reaching out to one or two more cancer specialist familiar with this cancer? 
I am so happy for you to have found us,
Sending tons of good wishes your way,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Yet another newly diagnosed cc

Rose May,

I am in Plymouth which is about an hour north of Milwaukee. It is about half way between Sheboygan & Fond du Lac. I believe you are in good hands in Madison. I have heard a lot of good things about University Hospital.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Yet another newly diagnosed cc

Hello Rose and thank you for sharing your 'Dancing with Cancer' website. You have an amazing energy and spirit, we can feel it right through the board! I am happy that you have found this cc crew. In my experience here,  they are a wealth of information; a place to get answers, share the experiences of the day, or vent out fear & frustration.  The story of your symptoms sound so much like my Dad's, he was diagnosed in Nov. 08. 

You're in our thoughts Rose....

Best,
Tess

Re: Yet another newly diagnosed cc

Hi Rose, if you continue to itch, you can email me directly or on this site and I can give you ideas on all the things we've tried on Charlie.  I hope you get some relief soon from your stent.  I know you must be reeling from being newly diagnosed.  There are so many caring people here to help you with questions, support, whatever you need.

Carol