Hello Marion & Elaine, good morning to you! Yes, Marion- It is true of Dad's most likely reaction & if it were anyone else, Dad would smile right along with us- he's still not lost his humor! And Elaine, two of the bros are transplants to your new region, but the third bro is down in Myrtle for a week of golf... but it may turn out to be a few days of pub hopping- given the conditions!
Thanks again for sharing the details of Gary's story. The hernia connection to the surgery makes sense. I am still confused about what is actually leaking, while it sounds like bile (green/yellow)- it also sounds like it's being described as a pancreas leak. Dad has a biliary catheter that is used to divert his bile & if it's capped off, on the external tubing, it goes back into his system, but if the bag is attached it will flow right out into the bag. This tubing was the source of infection that led to Dad going septic in Dec. That's interesting that bilirubin levels have never been discussed with Gary, though a nurse explained to us that the bilirubin level is indicative of a level of disease of the liver. Dad too is always cold, I don't think I'd recognize him these days without his heated blanket .... when he gets the chills/shakes, he wraps it right around his head- to try and warm up, also slight stomach upset, extreme fatigue, & almost total loss of appetite.
Regarding your question about the oxaliplatin not working once you resume it, per an article I found online... "Therefore, the present study investigated the use of oxaliplatin discontinuation and reintroduction in a novel stop-and-go strategy, OPTIMOX1.", from the American Society of Clinical Oncology. The author's e-mail is there and it may be worth dropping him a line of inquiry.....
Regarding the lack of appetite with chemo.... While Dad is eating like a bird these days, we've also found that he has reverted back to earlier years in his request for food/drink. He sent us on a goose chase for butterscotch tasty cakes & Petri sugar cookies with raisins (which they quit making years ago- per Stroehmanns), and a orange juice/lemonade cocktail (which he's not requested in Mom & Dad's 40 yrs. together) - but claims to have enjoyed as a child. I ran into a gentleman around Dad's age in the local grocery & told him of my quest for the tasty cakes & he said that those cakes were always a treat when the boys were younger & were definitely reminiscent of happy go lucky childhood days, the cakes are nostolgic for guys that age- he explained. The prescription appetite stimulants have not done much to stimulate his appetite & his key food group these days consist of ice cream floats & shakes. Another element of nostalgia that we've seen in Dad is his desire to purchase 50-70's music. As he's home all day now in front of the TV, I can't believe the impact these infomercials are having on him- he sent me out for nose/ear clippers last week & insisted that I get the one with the little light & mini razor (we all know where he saw this one). If you can imagine, we found it at TJ Max in Vestal!
As an aside Elaine, specific to your old NY territory, we tried to go to dinner at Binghamton's Kampai last night & the little guy was scared off by the sushi chef at the next table so we left, ended up at McDonalds on the parkway- a far cry from the mouth watering tempura..... FYI, they've removed the great playland at the golden arches in Vestal & replaced it with high end, georgous HGTV inspired glass tiles. The new room is a Starbucks replica with high-bar seating, and totally not child-friendly.... they appear to be catering to a new customer base these days.
You guys hang in there too.... many hugs coming your way!