Topic: Oxaliplatin/xeloda

Have been on this treatment (3 week cycle, Oxy Day 1 and 6 Xeloda pills twice a day Day1 to 14, rest Day 15-21) a since October and have had  no growth, some shrinkage and my ca19-9 levels are down from 508 to 208.  The neuropathy and fatigue are growing  but I can't argue with the results.

Re: Oxaliplatin/xeloda

This is wonderful!  Try and stay strong and rest whenever you can.  The numbers drop is dramatic!

Stay positive and know that we are all here for you and celebrate this with you!

You are in my thoughts and prayers!

Hugs,
Pam

My Mom lost her one year battle with CC on April 3, 2009.

"A prognosis is simply an audit of how truly precious each day is.  Live each day to the maximum, celebrate what was, and what is - Don't spend your life looking forward to what will or might be." .... words of wisdom from my beloved son on hearing of his grandmother's CC prognosis.

Re: Oxaliplatin/xeloda

That is such great news.  So sorry about the neuropathy which has  been an issue for so many, on this board.  You might want to see if there are any tips or hints hidden in the previous postings.   The "Search Function" will lead you there. 
Thanks for sharing your success.  It gives hope to many.

Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Oxaliplatin/xeloda

while doing some more reseach i came across an interesting article about the GRAVIOLA TREE ,did anyone ever hear of this plant, please let me know if you did , it might be worth some reseach...never quit and never take no for an answer.......ron

Re: Oxaliplatin/xeloda

I did some research on the neuropathy and found some articles on Pubmed that suggest infusions of calcium and magnesium before to cut the risk and severity of the problem. I sent the links to my doctor and we will hopefully be discussing it on monday, which will be too late for my first round, but  hopefully not the second.

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: Oxaliplatin/xeloda

For me, CTCA had me take L-Glutamine powder three times a day for five days post Chemo, then stop till next time. I had no symptoms of neuropathy thru pout my noew completed chemo treatments....

Saty positive look for the good as hard as it may be... and trust God...

If looking foward brings you fear... and looking back brings you pain.... Look beside you and HE will always be there...

Re: Oxaliplatin/xeloda

Congrats on the good numbers!   I'm making notes about all the different chemo combos, wondering what I will go on next, post resection chemo.

jrsatlanta, I'm in the Atlanta area too.  I had a resection done Feb 18 at Emory.  Where are you being treated?

- Suzanne

Re: Oxaliplatin/xeloda

Hi,
I am starting this regimen this week.  The neuropathy stories are beginning to scare me.  I am a nurse practitioner and I work in an Endocrine practice.  I treat diabetes day after day.  Many of my patients have neuropathy as a complication.  I am interested in knowing what has worked for anyone.  Also....I am a huge knitter.  I find it very relaxing and am worried that I will not be able to knit once I start this regimen.
Lillian