Topic: Sleepless nights

What do you all do with your night hours? 

My sleep schedule is completely whacked at this point.  The itching is so intense that I give up even trying to lay in bed.  Thank god I get some relief from it during the daylight hours but then I spend those sleeping sleeping sleeping.

But the night hours get really long.  Around 11:00PM,  6:00 is far far away.  I find I can't really read becuase of the itching, so I try to take hot baths for relief, do housework, surf the internet, even do some cooking.  But even so there are plenty of empty hours to fill.

Anyone else dealing with this?

O my Father, if it be possible, let this cup pass from me; nevertheless not my will but thine be done.  Matt 26:39

Re: Sleepless nights

Rose,
I did right before I was first diagnosed.  Lainy recommends Sarna for the itching.  I do think you should see your doctor ASAP about the itching so they can get your bilirubin down and relieve your itching.  I know, it's almost unbearable!  I had stents put in that relieved the itching within a couple of days.

3 (edited by rose may Sat, 07 Mar 2009 15:58:20)

Re: Sleepless nights

I had the stent placed about 2 weeks ago.  They are hoping to do surgery in mid-March and don't seem to want to go back in to replace the stent or attempt an external stent for fear of creating complications that set the operation back.  I don't have another appt until Tuesday and it seems I'm just stuck coping with this for now.

Is Sarna a cream or a drug?



By the way, I really enjoy your weblog........Its helpful to have someone else who walks by faith to share the journey with...even if it's just online.

O my Father, if it be possible, let this cup pass from me; nevertheless not my will but thine be done.  Matt 26:39

Re: Sleepless nights

Hi Rose, Sarna is an over the counter cream you can get at Walgreen's or CVS.
It's very strong so you really can't use it more than a couple of weeks. Also Teddy found ice bags helped. I am not a doctor but I don't understand why they wouldn't check on that stent. Your comfort is paramount! Many have had their stents fixed and still had surgery. Good luck fellow Wisconite!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Sleepless nights

A friend who's an aromatherapist suggested mixing a LOT of peppermint essential oil  into body lotion and coating  myself in that several times a day. That did give me enough relief to get me through a couple of weeks until my first surgery (and I smelled really nice...)

Hope this helps! (And by the way, I'm a transplanted Wisconsinite myself-- grew up in Milwaukee, went to college in Madison, and still spend part of every summer at our cottage near Fond du Lac!)

Wishing you all the best--

Kristin

Peace, hope, and healing to all!

Re: Sleepless nights

I took lukewarm baths in baking soda. It also helped.. Hope you can get some relief before your surgery.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: Sleepless nights

Rose may when is the surgery on?
         kind regards  Janet

Re: Sleepless nights

Interesting how many people there are from Wisconsin on this board....what's up with that?

I am supposedly scheduled for surgery on March 16 but that was contingent on getting my bilirubin levels down and being in good health to  undergo a major surgery.  Meanwhile I am shedding pounds, not absorbing nutrients from my food, have made very little progress in getting bilirubin levels down and feeling worse by the day, so don't know what;s going to happen.

O my Father, if it be possible, let this cup pass from me; nevertheless not my will but thine be done.  Matt 26:39

Re: Sleepless nights

Hey Im from Australia but I hope your numbers improve before the 16th




     Janet

Re: Sleepless nights

Rose May,
I am sorry, I cant remember...did you get stents? If not, are they considering them?

I think my bili numbers lowered (and I got some relief) if I drank LOADS of water. I drank so much, my pee was actually almost clear when it was tea color before. I guess I flushed some of it out.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: Sleepless nights

Rose,

It is rather interesting that so many of us are from Wisconsin. Something to think about. I will be hoping for the best for you with the scheduled surgery.

Kristin,

We have a lot in common. I'm originally from Sheboygan, now live in Plymouth & also have ties to Milwaukee, Madison & a cottage north of Fond du Lac. Small world, isn't it?

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Sleepless nights

Darla--

Plymouth, good heavens! Our cottage is on Forest Lake, next to Mauthe Lake! You are sooooo lucky to live year round in such a beautiful area!

Kristin

Peace, hope, and healing to all!

Re: Sleepless nights

Kristin,

We are on the east side of Lake Winnebago.  This is a beautiful area, but the winters have been brutal the past 2 years.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.