1 (edited by marions Thu, 19 Mar 2009 15:25:14)

Topic: NIH Web Conference

Today

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Re: NIH Web Conference

Marion, I have a question for you.  Do you find it odd that Charlie's oncologist at Wake Forest/Baptist Med. Center would not tell us Charlie's
CA 19-9 while he was undergoing chemo there for several months?  I don't know if he even had the test there.  The doctor said he didn't think it was relevant and wouldn't discuss it. I hear so much about it here on the board and I was surprised the doctor wasn't more open to it. Any thoughts?  Thank you.

Carol

Re: NIH Web Conference

Carol....I recall a conversation with a surgical oncologist who had made a similar comment.  But, as we have seen on this board many patients do not show any elevated tumor markers until the later stage of this disease.  I think that although, the tumor markers are of high value, all other symptoms of the disease are prevalent when diagnosing and treating this cancer.  The conversation today focused on the value of tumor markers and that only around one hundred protein markers have been identified although, there are over one thousand that have not yet been specified. 
I don

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: NIH Web Conference

Carol...one of my standard questions to physicians is:  Would you answer some questions on our board?  I have had a few positive responses.  This might be one question I could forward someone who can take the time and explain it in more detail.

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: NIH Web Conference

Marion, thanks for taking the time to answer.  What you said is very interesting and a lot to take in and think about.  I will definitely listen to the session you mentioned.  It always bothered me that the CA 19-9 seemed important, but was just brushed aside by Charlie's doctor.  I appreciate the information.

Thank you Marion, David, Lainy and Teddy for making our voices heard in Phoenix.  I wish you all the best in Florida.  Hugs coming back to you.

Carol