Topic: Off chemo for a bit

After only one week on Xeloda, I have been taken off due to high liver values again. We will try again in 2 weeks. I am on steroids and milk thistle only. You can get chemo with a value of 3.0 and mine is 4.3...which isnt too bad since before chemo my value jumped to 6.3 for a bit.

I am disappointed and will definately have a firm talk with my liver today and tell it to behave. smile

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: Off chemo for a bit

Hi Kris

Sorry to hear you are having problems getting your chemo.  What exactly do you mean by liver levels?  Is it the liver function?  My problem is my blood platelet level.  I should be getting gemcitabine each week for 3 weeks followed by 1 week off, but they will only give me the chemo if my platelet level is 100 or over.   After my rest week it is usually about 150 (which is on the low side of normal).  By week 2 it is just over 100, but by week 3 it will be down to 70 or less, so no chemo.  So my regime has become 2 weeks on followed by by 2 weeks off.  Is it working?  I will get an idea next week when I get my latest ct scan result.

I hope you get your problem sorted out quickly since I know from my own experience how depressing it is to build up for your chemo only to miss out.  It's very tiring.

All the best

Ron

Re: Off chemo for a bit

Hi Kris, and sorry to hear about the delay. When you talk to the liver today you can threaten it with some onions! Hope you get much better news very soon.
Don't these body parts know they need to listen to us?

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Off chemo for a bit

Ron, it is one of the liver function values. My liver has never functioned well since the surgery. It is always acting up so I try not to worry too much about the possibility that the cancer has affected my liver function, as it is just a normal occurance since surgery.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: Off chemo for a bit

Hi Kris,  I feel bad that you were not able to do your chemo yet...I suppose it is better to be safe and not make things worse.  However do tell that liver of yours to 'snap out of it' because you are ready to kick butt!  I am keeping you and your naughty little liver in my prayers!  hugs across the world!  deb  I wish I could do more.

Re: Off chemo for a bit

Hi Ron - when I was going through chemo my red blood cells got low so I was given an injection of Procrit (Epoetin Alfa).   The Procrit boosted me up enough so that I could continue with chemo, no delays.   Don't know if Procrit is in Scotland but maybe there is an equivalent injection you could get.  Definitely worth asking your doc about.


Ron Smith wrote:

Hi Kris

Sorry to hear you are having problems getting your chemo.  What exactly do you mean by liver levels?  Is it the liver function?  My problem is my blood platelet level.  I should be getting gemcitabine each week for 3 weeks followed by 1 week off, but they will only give me the chemo if my platelet level is 100 or over.   After my rest week it is usually about 150 (which is on the low side of normal).  By week 2 it is just over 100, but by week 3 it will be down to 70 or less, so no chemo.  So my regime has become 2 weeks on followed by by 2 weeks off.  Is it working?  I will get an idea next week when I get my latest ct scan result.

I hope you get your problem sorted out quickly since I know from my own experience how depressing it is to build up for your chemo only to miss out.  It's very tiring.

All the best

Ron

- Suzanne