Topic: BACK FROM MD ANDERSON VISIT
My husband and I traveled from Ohio to MD Anderson last week and met with Dr. Steven Curley. (anyone heard of him or seen him??) We were really impressed with him.
Anyway, he decided Jack's tumor was inoperable at this point. (that's what Ohio State told us too after first saying they would operate......) Anyway, he said two of the ducts have tumor in and around them and the third duct doesn't have tumor in it, but it is right up against the outside of it. Therefore, doing surgery would have no benefit because he feels he couldn't get the whole thing right now.
We told him that Ohio State had told Jack to start Gemzar and IMRT therapy for 5-6 weeks. Dr. Curley agreed so he will start that on the 19th. We will then go back to Houston the end of April to see if the tumor "responded" - Not only do we need the tumor to shrink, be we need it to shrink in a very specific place, up against this one duct so it can be operable. I know this doesn't sound good seeing as only 10-20% of bile duct cancers respond to chemo and radiation and like I said, we need it to work in a a very specific place.
It's still hard to believe Jack is only 41 years old and has this horrible cancer. It's also hard to believe since he has no pain and is acting normal. I know this may change once Gemzar and IMRT start but I heard they are well tolerated??
Anyone have experience with that combination??
Hope everyone is doing as well as they can be doing. This really sucks and I feel for everyone going through this.
Any info on Gemzar and IMRT would be appreciated.