Topic: My visit to Mayo Clinic, Scottsdale, AZ
I went to the Mayo Clinic in Scottsdale, AZ today since we are here for spring training. This is what I learned:
My liver cancer came from having Crohn's Disease (which I have had since 1975) and it is rare for people with Crohn's to get cancer in the liver since it would usually show up in the bowels. However, the Dr. Borad said that the fact that the liver tumor grew because of the Crohn's means that it is less aggressive and responds better and people live longer.
The small tumors did not start as a result of the liver tumor bursting but grew from the liver and travelled to the outside casing of my bowel and are not floating around in my abdomen. These are my two sites-liver and bowel.
He was happy to see that my tumors had shrunk from the chemo since he said Gemzar (chemo drug) does not usually work. So he said I was doing well and stick with what I am doing now since being on his clinical trial means I would have to be off chemo for awhile and since it is working well, he didn't want to see that happen. He didn't rule it out when the chemo stops working and I have to move on to another drug therapy.
He agreed with everything my doctor is doing and said chemo won't cure it but buys time and keeps the cancer at bay until maybe they come up with something that will cure it. Anything I receive has to be systemic and not spot treated because I have multiple sites. I feel it was worth the visit and it confirms that the treatment I am receiving is the right one.
Positive review, in general.
I also read this in an article.
Cholangiocarcinoma (cancer of the bile ducts) is more common among patients with primary sclerosing cholangitis. An estimated 9%-15% of patients with primary sclerosing cholangitis will develop cholangiocarcinoma, a very lethal type of cancer. Patients at highest risks for developing cholangiocarcinoma are primary sclerosing cholangitis patients with cirrhosis who also have long-standing ulcerative colitis.
How many others have colitis or Crohn's???